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A crucial aspect of patient-centred care in BC is engaging those who truly represent the diversity in the province. One group often missed is youth, so Interior Health is working on ways to engage them in initiatives. In this post, our engagement leader Carol Stathers describes how Interior Health engaged high school students to get feedback on the organization’s new health portal:
MyHealthPortal is a new online tool launched in May 2016 to let Interior residents view lab results, diagnostic imaging reports, and appointments, as well as their personal health profile. As the project developed, a decision was made to allow access to any patient over the age of 16, and Interior Health launched a focus group to hear what younger residents thought of the idea.
Engaging young volunteers
Four students from Summerland Secondary School, three Grade 11 Civics students and one Grade 12 Law student, participated in the focus group with project managers Pamela Reece and Jesse Koteles last June.
Because there is no clear legislation in BC regarding the age at which a person can be given access to their health information, the discussions included:
- The age at which people be given access – perhaps 12, 16, or 19 – and when their parents should no longer be given access.
- Ensuring security and confidentiality of personal information.
- Identifying if unrestricted access could inadvertently cause harm.
- Requiring residents between ages 12-19 present a form signed by a physician, nurse practitioner or psychologist.
- The amount and type of information is safe to share – MyHealthPortal uses an “all-or-nothing” approach.
Outcomes of the focus group
Much of the discussions involved when and who should have access to the information. Bailey Johnson, Grade 12 Law student, asked if paramedics and emergency responders have access to the portal to look up patient information. The answer was that they do not, but this opened up a conversation regarding who else can access the information, such as parents.
The students were quick to understand the benefits of MyHealthPortal and reaffirmed that access for minors was an important part of their engagement.
Jesse Koteles, Project Manager at Interior Health
Grade 11 Civics student, Gurshan Saran, whose family is originally from India, asked about immigrants and how accessible MyHealthPortal is for those whose first language is not English, which helped confirm the need for multi-language training materials, such as videos, that demonstrate the portal’s value.
Another outcome of the discussion included how to reach out to youth and encourage them to use the portal, once access is available. “There is an opportunity for Interior Health to increase awareness of the portal to reach the youth population. We will be working on developing a communication strategy to reach them,” said Jesse Koteles.
Other recommendations from students included creating an app or mobile friendly website, as well as providing computers at Interior Health locations for those who do not have one.
If you are an Interior resident and over age 19, visit your local health unit with an email address and care card to set up your access to MyHealthPortal.
Author: Carol Stathers
Carol is an Engagement Leader from the Interior Region. She is excited to see the extensive involvement of patient partners in health care improvements across the province and always interested in learning how to get our patient partners more involved. Outside of work she enjoys hiking and family time in warm places!