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Because your voice matters.

Patient Partner, Peripheral Parenteral Nutrition (PPN) Research Study – Providence Health Care

Posted • Last updated

Closed

Commitment: Short-term

Connection method: Virtual

Open to Fraser – Vancouver Coastal

Last updated

Volunteer Opportunity
Have you ever received IV nutrition in a hospital? If so, we would love to hear your experience! We are seeking to patient partners to help inform our research aimed to improve the delivery and ordering of appropriate IV nutrition at St. Paul’s Hospital.

RSVP Now

Lead Organization/Department
Providence Health Care

Aim
• To conduct a retrospective chart review to collect data of patients who could have been appropriate for Peripheral Parenteral Nutrition (PPN) using criteria informed by existing research and guidelines.
• Patients partners will share their experience about receiving IV nutrition to help the research team with development of the research design, data analysis and research recommendations.

Level of Engagement
This opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.

 Eligibility
Open to volunteers from Vancouver Coastal Health communities who:
• Have received IV nutrition in hospital.
• Is a family member or caregiver of someone who has received IV Nutrition.

If you have a strong interest in this work but have not yet completed a PVN orientation and Patient Partner Commitment, are unsure if your experience is a good fit, please contact Jami Brown directly.

There will be an informal conversation about the opportunity. The goal is to find the best fit for all involved.

Logistics
• Number of vacancies: 1-2
• Date/Timeline: Initial engagement will happen between May-July 2022, with opportunity to continue with the project if the study is funded.  Meeting will occur weekdays between 8AM-4PM.
• Location: Virtual via Zoom.
• Commitment:  To be determined based on interest and availability of patient partner (could be 2-3 meetings, with additional correspondence over email).

Reimbursement
No out-of-pocket expenses are anticipated for this engagement opportunity. However, if you meet the eligibility criteria, but have concerns about your ability to participate, please contact Jami Brown- jbrown@bcpsqc.ca to see if support options are available. We are always seeking to better understand and reduce barriers to participation.

Background
Parenteral Nutrition (PN) is a life-saving therapy intended to meet the complete or partial nutrition and hydration needs of patients who have a non-functional gastrointestinal tract. Certain forms of PN must be run through a central venous catheter (CVC)), requiring clinicians specialized in CVC insertion. Peripheral Parenteral Nutrition (PPN) is a well-researched, widely-used, short-term nutrition therapy that can be used to supplement a patient’s nutrition, fluid, and electrolyte needs without a CVC insertion. In this way, PPN can be administered with less delay compared to other forms of PN. Despite this, at St. Paul’s Hospital (SPH), PN is the only infused through CVCs. We believe a group of patients receiving care at SPH could benefit from this low barrier form of nutrition support while waiting for CVC insertion for PN, or as supplementary nutrition support while they await surgery, among other reasons.

For this project, we would like to conduct a retrospective chart review to collect data of patients who could have been appropriate for PPN using criteria informed by existing research and guidelines. This audit will be used to gain further understanding of the gaps of current nutrition support practices and inform whether PPN would be a useful therapy to support the nutrition of patient’s at SPH.

Engagement Leader Contact Information

Jami Brown | BA, MAPC (she/her/hers) Engagement Leader BC Patient Safety & Quality Council 604.510.0449 jbrown@bcpsqc.ca

From Our Community

Jeanette Foreman

Northwest Quality Improvement Lead, Quality and Innovation, Northern Health

Jeanette Forman

PVN has really helped us engage with patient partners to improve health services at Northern Health.  It is more and more becoming the norm to include patients in the design, delivery and evaluation of health services.  PVN education and supports, involving patient partners, have enabled us to develop the capacity to include the patient voice to make care better and achieve better health outcomes.