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Because your voice matters.

Member, Kidney Care Clinic Best Practices Guideline Update Working Group

Posted

Closed

Commitment: Short-term

Connection method: Virtual

Open to Provincial Region

Posted

Are you (or your family member) receiving non-dialysis care (i.e., not on dialysis or with a transplant yet) at a Kidney Care Clinic (KCC) in BC? Would you be interested in joining a working group that aims to improve the way patients are supported in their kidney care journeys at KCC? If so, check out this opportunity, and RSVP today!

Role description
The BC Renal Kidney Care Clinic Committee is seeking patient and family members to join the Kidney Care Clinic Best Practices Guideline Update Working Group. The Working Group aims to update parts of the best practices guideline for the care teams of Kidney Care Clinics related to supporting patients in their care journey and treatment education at the Kidney Care Clinics in BC.

Members of the Working Group will include health professionals from health authorities, patient partners, as well as staff from BC Renal. Members will work together by sharing their perspectives on the update of clinical practice guidelines for non-dialysis kidney care. The patient partners will help ensure that the updated guidelines support person- and family-centered care throughout the non-dialysis care journey of those visiting Kidney Care Clinics across BC.

Level of engagement
Collaborate: BC Renal will work together with all members in decision making, developing alternatives, and solutions and include your recommendations into each decision as much as possible.

Requirements
• Person (patients or caregivers of patients) who currently attends one of BC’s Kidney Care Clinics.
• Experience working and sharing perspectives with diverse groups of people.
• A strong interest in working together with health professionals to improve the quality of the experience of patients/families attending a Kidney Care Clinic in BC.
We welcome patients/caregivers of various ages, genders, kidney disease experiences and cultural backgrounds from across the province.

Number of positions available
Up to 3

Commitment
• One-hour meeting via Zoom every 4-6 weeks during typical workday hours
• First meeting will be held in May
• Term membership is six months (i.e. 6-8 meetings)

Compensation
Expenses for travel and accommodation, if needed for any meetings, will be reimbursed.

RSVP questions
If you are interested in this experience, please answer the following questions by email
(patientengagement@bcrenal.ca) or phone (604- 875-7340) by April 30, 2024.

1. Why are you interested in being on this working group?
2. What skills and expertise would you bring to this working group?
3. Which health authority is the Kidney Care Clinic you/your family member attend located? (i.e., Fraser Health, Interior Health, Island Health, Northern Health, Providence Health Care or Vancouver Coastal Health)?

From Our Community

Agnes Black

Director, Health Services & Clinical Research and Knowledge Translation – Providence Health Care

Agnes Black

It’s really hard to make changes in health care. When a PVN patient partner says, ‘This is important to us’ it keeps us grounded on why a change is needed and keeps us motivated to keep going on projects.