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Because your voice matters.

Member, Digital Health Research Initiative Steering Committee, BC Children’s Hospital Research Institute

Posted • Last updated

Closed

Commitment: Long-term

Connection method: Virtual

Open to Provincial Region

Last updated

There is no RSVP for this opportunity. Please email Jami at jbrown@bcpsqc.ca if you are interested.

Volunteer Opportunity
Using digital solutions like smart phones apps and virtual care can improve the health and well-being of our most vulnerable children and youth. The BC Children’s Hospital Digital Health Research Initiative is actively working to support the digital transformation at BC Children’s Hospital and are seeking one-two patient partners to join their Digital Health Research Initiative Steering Committee.

Lead Organization/Department
Research Institute – BC Children’s Hospital

Aim
• Provides leadership and advice on Digital Health priorities and activities to all members of the BC Children’s Hospital Research Institute (BCCHR) community.
• Patient partners will provide input on digital health priorities and use cases and review internal digital health grants to ensure responding to patient needs is kept at the centre of our digital health work.

Level of Engagement
This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

 Eligibility
Open to volunteers from across the province who:
• Experience as a patient or primary caregiver of a patient at BC Children’s Hospital within the past 5-10 years
• Are comfortable telling their story

There will be an informal conversation about the opportunity and determination of the best fit for both patient and health care partners prior to placement.

Logistics
• Number of vacancies: 1-2
• Date/Time: To be determined in consultation with patient partners
• Commitment: Quarterly, with some reading in between meetings
• Location: Videoconference

Reimbursement
Reimbursement will be decided upon with the patient partner(s) including time spent in meetings and for travel. If you meet the eligibility criteria, but have concerns about your ability to participate, please contact Jami Brown- jbrown@bcpsqc.ca to see if support options are available. We are always seeking to better understand and reduce barriers to participation.

Background
Digital health is defined as the use of information technology/electronic communication tools, services, and processes to deliver health care services or to facilitate better health.

Information and communication technologies are now considered core parts of modern health systems. Current advances in Data Science and Digital Health development are predicted to have a beneficial effect on health care services delivery to the community by enabling patients, and their families, to access faster, more efficient care. However, this predicted success relies greatly on improved involvement from patients and their families in the entire trajectory of conception through to digital tool development, to establish their trust, guidance, and stewardship.

Despite efforts towards patient involvement, it remains a problem in Digital Health research. As a result, many of today’s early Digital Health applications lack true patient centricity. This is a problem because patients need meaningful access to complete data to manage and share their own health information to achieve optimal outcomes.

The BCCHR Digital Health Research Steering Committee provides leadership and advice on Digital Health priorities and activities to all members of the BC Children’s Hospital Research Institute (BCCHR) community. This includes defining the processes for making decisions and developing a governance structure for executing Digital Health priorities at BCCHR.

Researchers at the BC Children’s Hospital Research institute (BCCHR) want to build on their longstanding patient-centered approach and established trust-based relationships, to create novel partnerships whereby the needs of patients and families are actively represented throughout Digital Health research projects, so we can work together to improve access to complete health information.

As a member of the Digital Health Research Steering Committee, you will have the opportunity to work with a diverse group of researchers, hospital administrators, industry partners and students to inform digital health priorities on the hospital campus and give feedback on proposed digital health research projects to ensure patient needs are kept central in this work.

Engagement Leader Contact Information

Jami Brown | BA, MAPC (she/her/hers)
Engagement Leader
BC Patient Safety & Quality Council
604.510.0449
jbrown@bcpsqc.ca

From Our Community

Pamela Jessen

Patient Partner, Langford

Pamela Jessen

The Patient Voices Network allows me to engage and educate others on various health-related topics. By sitting on various committees and taking part in many activities, I can create real change in health care for everyone. It’s so empowering!