Skip to main content

Because your voice matters.

Invitation for Engagement for Provincial Pediatric Advance Care Planning Project

Posted

Closed

Commitment: One-time

Connection method: Virtual

Open to Provincial Region, Patient partners across BC

Posted

Canuck Place Children’s Hospice, Child Health BC, and BC Children’s Hospital are collaborating to establish a provincial approach to pediatric Advance Care Planning (pACP). This is a Ministry of Health priority project. The goal is to improve the delivery of pediatric care services for children with serious illness and their families throughout British Columbia.

Opportunity:
If you are a family member in BC who has had an experience with advance care planning for your infant, child or youth (0-19 years of age), or are living and supporting a child with a serious illness, we invite you to share your perspective and insights.

This opportunity will involve Journey Mapping with an experienced facilitator from the Children’s and Women’s (C&W) Patient Experience Team. A journey map offers an opportunity to hear from patients and families about their experiences within the healthcare system and identify gaps in care and service delivery.

Dates for the session are:
• Thursday, October 19th 11am-1:00pm
or
• Monday, October 23rd 5pm- 7:00pm

Compensation of $50 for the time commitment.

The diversity of participants enriches our discussions. For anyone who may need extra support, we can offer translation services across 140 languages.

Please contact Azariah Jenney, pACP Project Manager : Azariah.jenney@cw.bc.ca

What we aim to support when participating:

• A supported and psychologically safe, coordinated setting
• An opportunity to meet families across BC who receive/have received, experienced pediatric advance care planning services.
• Reduce unintended inequities and differentiated access across BC.
• A safe space that does not identify individuals which families can share as much as they chose to about their experiences
• Better understanding of what families need with assessments, timelines, criteria, funding and related activities and agencies with pediatric advance care planning
• Opportunity to debrief and access follow-up support if identified following the session.

If interested in participating in this opportunity or wish to learn more about this engagement session, please contact Azariah.jenney@cw.bc.ca by Wednesday 18th October 2023.

We look forward to hearing from you- your voice matters!

 

Level of Engagement

This opportunity is at the level of Inform on the IAP2 Spectrum of Public Participation.

Eligibility

  • Willing & comfortable to share health care experiences in a group setting
  • Specific health care experiences [details below]
  • Have access to technology and the internet to participate in the engagement opportunity
  • Comfortable using technology to attend online/virtual meetings
  • An interest in improving health care services
  • If you are a family member in BC who has had an experience with advance care planning for your infant, child or youth (0-19 years of age), or are living and supporting a child with a serious illness.Serious illness is defined as a condition that carries a high state of uncertainty, stress and/or care having an illness or medical condition, either mental or physical in childhood that negatively impacts a child’s quality of life or excessively stresses their care giver/parent.
Patient Partners ARE NOT required to be PVN members to participate in this engagement opportunity.

Health Care Partner Contact Information

Azariah Jenney Project Manager- Pediatric Advance Care Planning, PainCare360 | BC Children's Hospital (647) 564-0078 azariah.jenney@cw.bc.ca

From Our Community

Shannon Griffin

Leader, Patient and Family Centred Care in Fraser Health

Shannon Griffin

Recently, a PVN Patient Advisor asked healthcare partners, “What are we learning from patients, families, and others thus far during this pandemic?”. This is an excellent question and one to ask ourselves daily.