Patient Partner, Stroke Research Project Working Group

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Every minute counts when you’re having a stroke. Understanding the lived experience of you or your loved one who has had a stroke helps improve stroke care, so Simon Fraser University and Fraser Health are inviting two patient partners to co-design their stroke research project.

Open to: Patient partners in Fraser Health communities

Date
20190322

Volunteer Opportunity

Every minute counts when you’re having a stroke. Understanding the lived experience of you or your loved one who has had a stroke helps improve stroke care, so Simon Fraser University and Fraser Health are inviting 2 patient partners to co-design their stroke research project.

Lead Organization/Department

Simon Fraser University | Fraser Health

Aim

The objective of this study is to partner with patients with lived experience of stroke to design the research project.

The patient partners will participate in the discussion of methodology, interpretation of research findings, research manuscript preparation and proofreading, patient-driven narratives and translation efforts.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

 

Eligibility

– patients that have had a stroke
– excels at working in a team environment and sharing input
– open to meeting in person, teleconference and/or email
** Knowledge about research participation and/or science background is a bonus, but not mandatory

If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

Vacancies: 2
Date/time: To be determined with patient partners
Location: Via telephone and in-person, in the Surrey area
Commitment: Seven months to a year, 2-3 hours a month

Reimbursement

Preapproved expenses related to travel to in person meetings will be reimbursed (including mileage, parking and/or public transit). Other reimbursements may be discussed with successful patient partners directly once placed.

Background

Stroke can be caused by either of two things – the blood supply in the brain is blocked (ischemic stroke) or there is bleeding inside the brain (hemorrhagic stroke). The second type is worse and lead to death more often.
However, it is not very clear and well-understood how the way stroke is caused affects recovery or if patients are even aware of this. In this study, we aim to work with patient partners to understand this question by looking at pictures of the brain (acquired using a special machine called MRI) at various period following the different types of stroke.

Interested?

Open to patient partners in Fraser Health communities

If you have additional questions about this volunteer opportunity, please contact:

Rableen Nagra, MA
Patient Engagement Specialist, Fraser Centre – BC Support Unit
Mobile: 778-238-6418
Email: rableen.nagra@fraserhealth.ca

Deadline
March 22, 2019