Skip to main content

Because your voice matters.

The Impact of Illness on Work and Activities

Posted

Closed

Open to Provincial Region

Posted

Patient partners with experience with alopecia areata, atopic dermatitis and migraines needed.

Health Areas
Headache and Migraine, Eczema, Hair Problems

Opportunity Purpose
We are developing a survey to understand the impact of illness on people’s ability to work. We are focusing on three health conditions: alopecia areata, atopic dermatitis, and migraines. The perspectives of patient partners will be vital to ensuring that the survey captures what matters most to patients who are experiencing different levels of severity of illness.

Details
All interactions can be completed through the phone or internet (video conference). Patient partners will participate in meetings with the research team and be encouraged to provide their thoughts on how the survey should be designed, disseminated to patients, and their interpretation of the results. We expect approximately 6 meetings over the course of one-year.

Eligibility
Age: 19 Years – 120 Years Old
Accepting Healthy Volunteers: No

From Our Community

Jeanette Foreman

Northwest Quality Improvement Lead, Quality and Innovation, Northern Health

Jeanette Forman

PVN has really helped us engage with patient partners to improve health services at Northern Health.  It is more and more becoming the norm to include patients in the design, delivery and evaluation of health services.  PVN education and supports, involving patient partners, have enabled us to develop the capacity to include the patient voice to make care better and achieve better health outcomes.