Because your voice matters.

Respondent, Epilepsy Priority Setting Survey

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Open to Patient partners across Canada

Last updated

EpLink – The Epilepsy Research Program of The Ontario Brain Institute has recently launched a national survey related to epilepsy, and is hoping to hear from patients and caregivers across Canada. The survey gathers the unanswered questions that patients and their families have about epilepsy, and will be used to set a national epilepsy research agenda.

This priority-setting partnership is a collaboration between EpLink, the Ontario Brain Institute, and the James Lind Alliance. We would love to have the input of the epilepsy community in BC!

The survey is available in both French and English and can be found at http://braininstitute.ca/epilepsy-psp

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

Health Quality BC administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.