Because your voice matters.

Respondent, Epilepsy Priority Setting Survey

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Open to Patient partners across Canada

Last updated

EpLink – The Epilepsy Research Program of The Ontario Brain Institute has recently launched a national survey related to epilepsy, and is hoping to hear from patients and caregivers across Canada. The survey gathers the unanswered questions that patients and their families have about epilepsy, and will be used to set a national epilepsy research agenda.

This priority-setting partnership is a collaboration between EpLink, the Ontario Brain Institute, and the James Lind Alliance. We would love to have the input of the epilepsy community in BC!

The survey is available in both French and English and can be found at http://braininstitute.ca/epilepsy-psp

From Our Community

Lucie Neliba

Patient Partner, Surrey

Lucie Neliba

The Patient Voices Network has connected me to a community with the same drive to bring person- and family-centred care to the forefront. I am grateful for all opportunities I have been a part of thanks to PVN, which positively impacts patients like my sister and their caregivers. No matter how small, all patient engagement will help shape the future of health care and that I can stand behind

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

The BC Patient Safety & Quality Council administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.