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Because your voice matters.

Participant, Adverse Drug Event Research Group

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Open to Indigenous patient partners across BC

Last updated

Vancouver Coastal Health is going to be testing a clinical adverse drug event reporting platform in upcoming years. This platform could eventually be used to transmit a flag to all practitioners in a patient’s circle of care when a patient presents to emergency departments experiencing problems due to their prescribed medications. We are looking for patient partners that identify as Indigenous and take at least one prescribed medication for a chronic medical condition. We need their perspective as we design and implement a randomized control trial to determine the impact of communicating prior adverse drug events on patients’ future health. It is currently unclear whether assigning labels to patients would be helpful (i.e. by encouraging them to access the best treatment for them) or detrimental to them (i.e., by creating barriers to access for needed therapies).

The patient partner would help to inform the design and implementation of the trial as well as the interpretation and dissemination of the results. Weekly meetings will be held at Vancouver General Hospital but virtual participation can be arranged (teleconference/ online).

All background materials relevant to this initiative can be found on our website:
http://www.actionade.org

Contact 

Amber Cragg
Department of Emergency Medicine, University of British Columbia
amber.cragg@ubc.ca

From Our Community

Shana Ooms

Executive Director of Primary Care Strategy, Policy and Quality — BC Ministry of Health

Shana Ooms

Where those of us in the room may have debated policy or wording, patient voices made sure patients were top of mind. And as a result, significant improvements were made to simplify something that was otherwise complex. Patient voices at the table bring us back to reality in terms of what we are trying to achieve.