Because your voice matters.

Respondent, Epilepsy Priority Setting Survey

Posted • Last updated

Closed

Open to Patient partners across Canada

Last updated

EpLink – The Epilepsy Research Program of The Ontario Brain Institute has recently launched a national survey related to epilepsy, and is hoping to hear from patients and caregivers across Canada. The survey gathers the unanswered questions that patients and their families have about epilepsy, and will be used to set a national epilepsy research agenda.

This priority-setting partnership is a collaboration between EpLink, the Ontario Brain Institute, and the James Lind Alliance. We would love to have the input of the epilepsy community in BC!

The survey is available in both French and English and can be found at http://braininstitute.ca/epilepsy-psp

From Our Community

Christine Wallsworth

Patient Partner, Vancouver

Christine Wallsworth

Patient and family partners should not be a check box on research proposals! They need to be involved right from the start. I know patient and family partners are doing their part by providing their knowledge to researchers from their lived experience.  It’s a win-win for us to work together through PVN to make sure our input drives improvements.

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

Health Quality BC administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.