Vulvar Pain Research Advisory Committee

Posted March 15, 2023 • Last updated April 5, 2023

Closed April 10, 2023

Open to Provincial Region

Last updated April 5, 2023

Patient Research Advisory Group with experience in painful sex, vulvar pain, or vulvodynia

Health Areas
Endometriosis, Vulvar and Vaginal Disorders

Opportunity Purpose
In this research, we are seeking to identify a set of compassion concepts that would serve as a reference guide for developing an interactive digital health platform for patients with vulvar pain. Patient partner perspectives are needed because only patients understand the most crucial concerns regarding vulvar pain and their perspectives are needed in developing patient-centered digital platforms.

Details
The patient partners will provide an overall guide to the study from a patient perspective. Specifically, they will 1. Review the initial proposal and suggest revisions 2. Guide on study recruitment and data collection (interviews) 3. Review the compassion care concepts 4. Review and provide feedback on a mockup for the study 5. Provide guidance and suggestions on the validation exercise.

Eligibility
Age: 18 Years – 70 Years Old
Accepting Healthy Volunteers: No

Learn more at REACH BC

From Our Community

Shana Ooms

Executive Director of Primary Care Strategy, Policy and Quality — BC Ministry of Health

Where those of us in the room may have debated policy or wording, patient voices made sure patients were top of mind. And as a result, significant improvements were made to simplify something that was otherwise complex. Patient voices at the table bring us back to reality in terms of what we are trying to achieve.