Because your voice matters.

Vulvar Pain Research Advisory Committee

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Open to Provincial Region

Last updated

Patient Research Advisory Group with experience in painful sex, vulvar pain, or vulvodynia

Health Areas
Endometriosis, Vulvar and Vaginal Disorders

Opportunity Purpose
In this research, we are seeking to identify a set of compassion concepts that would serve as a reference guide for developing an interactive digital health platform for patients with vulvar pain. Patient partner perspectives are needed because only patients understand the most crucial concerns regarding vulvar pain and their perspectives are needed in developing patient-centered digital platforms.

Details
The patient partners will provide an overall guide to the study from a patient perspective. Specifically, they will 1. Review the initial proposal and suggest revisions 2. Guide on study recruitment and data collection (interviews) 3. Review the compassion care concepts 4. Review and provide feedback on a mockup for the study 5. Provide guidance and suggestions on the validation exercise.

Eligibility
Age: 18 Years – 70 Years Old
Accepting Healthy Volunteers: No

Learn more at REACH BC

From Our Community

Derek Koch

Spiritual Health Practitioner and Patient- and Family-Centred Care Lead — Kelowna General Hospital

Derek Koch

The bottom line is because we’re caring for patients. People who know best are those who are receiving the care so it makes logical sense that we would consult with them about their experiences. By connecting with PVN we have been able to educate our teams about the value of patient partners and how important their perspective is in our services.

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

Health Quality BC administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.