Because your voice matters.

Vulvar Pain Research Advisory Committee

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Open to Provincial Region

Last updated

Patient Research Advisory Group with experience in painful sex, vulvar pain, or vulvodynia

Health Areas
Endometriosis, Vulvar and Vaginal Disorders

Opportunity Purpose
In this research, we are seeking to identify a set of compassion concepts that would serve as a reference guide for developing an interactive digital health platform for patients with vulvar pain. Patient partner perspectives are needed because only patients understand the most crucial concerns regarding vulvar pain and their perspectives are needed in developing patient-centered digital platforms.

Details
The patient partners will provide an overall guide to the study from a patient perspective. Specifically, they will 1. Review the initial proposal and suggest revisions 2. Guide on study recruitment and data collection (interviews) 3. Review the compassion care concepts 4. Review and provide feedback on a mockup for the study 5. Provide guidance and suggestions on the validation exercise.

Eligibility
Age: 18 Years – 70 Years Old
Accepting Healthy Volunteers: No

Learn more at REACH BC

From Our Community

Laura Klein

Clinical Practice Consultant in Fraser Health

Laura Klein

Seeking the patient perspective doesn’t have to be complicated; it simply entails a commitment to ask and listen. Patient advisors not only bring a valuable perspective but also share original ideas and unique skills. Including the patient and family perspective changes the conversation and aligns the team’s focus towards common goals.

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

Health Quality BC administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.