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Because your voice matters.

Vulvar Pain Research Advisory Committee

Posted • Last updated


Open to Provincial Region

Last updated

Patient Research Advisory Group with experience in painful sex, vulvar pain, or vulvodynia

Health Areas
Endometriosis, Vulvar and Vaginal Disorders

Opportunity Purpose
In this research, we are seeking to identify a set of compassion concepts that would serve as a reference guide for developing an interactive digital health platform for patients with vulvar pain. Patient partner perspectives are needed because only patients understand the most crucial concerns regarding vulvar pain and their perspectives are needed in developing patient-centered digital platforms.

The patient partners will provide an overall guide to the study from a patient perspective. Specifically, they will 1. Review the initial proposal and suggest revisions 2. Guide on study recruitment and data collection (interviews) 3. Review the compassion care concepts 4. Review and provide feedback on a mockup for the study 5. Provide guidance and suggestions on the validation exercise.

Age: 18 Years – 70 Years Old
Accepting Healthy Volunteers: No

From Our Community

Lucie Neliba

Patient Partner, Surrey

Lucie Neliba

The Patient Voices Network has connected me to a community with the same drive to bring person- and family-centred care to the forefront. I am grateful for all opportunities I have been a part of thanks to PVN, which positively impacts patients like my sister and their caregivers. No matter how small, all patient engagement will help shape the future of health care and that I can stand behind