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Because your voice matters.

Using Photovoice to Share Experiences of Recovery After ICU

Posted

Deadline: Apply by

Open to Provincial Region

Posted

Have you been an ICU patient or a family caregiver of an ICU patient?

Study Purpose
This research aims to:
1) assess the impact of photovoice workshops on participants’ emotional and social well-being
2) document the realities of recovery from critical illness through the photos and stories of ICU survivors and their caregivers
3) create a virtual photo exhibit to promote awareness of critical illness recovery.

The first workshop for caregivers will start on November 6 from 5:30-7:30 PM Pacific.

Details
You will take part in 5 weekly virtual group photo discussion sessions, facilitated by our patient partner. Over this time, you will generate photographs to illustrate your experiences of recovering from critical illness following hospital discharge OR your experiences of providing care for someone recovering from critical illness following hospital discharge. At the weekly virtual meetings, you will share and discuss your photos and the aspects of your experience the photos represent. The content of your photos is up to you. Participants will receive an honorarium as a thank-you for their time and contribution.

Eligibility
Age: 19 Years – 100 Years Old
Accepting Healthy Volunteers: No

Estimated commitment
5 weekly 2 hour discussion sessions and a 1 hour weekly activity for 4 weeks. After all 5 group discussions there will be one interview that will take up to 1 hour.

After you express interest, our team member will contact you and ask you a few questions to determine whether you are eligible.

Inclusion Criteria
• The 30 participants will include 15 survivors and 15 family caregivers from BC and ON.
• Survivors will include individuals who were admitted to ICU for ≥4 days in the last 5 years, are ≥19 years of age, can speak English and have the capacity to give informed consent.
• Family caregivers of survivors fulfilling these inclusion criteria will be eligible, with family inclusive of a relative (an adult child, sibling, spouse, son-in-law or daughter-in-law), unmarried partner, neighbour or close friend.

Exclusion Criteria
Survivors who are receiving palliative care will be excluded.

From Our Community

Christine Wallsworth

Patient Partner, Vancouver

Christine Wallsworth

Patient and family partners should not be a check box on research proposals! They need to be involved right from the start. I know patient and family partners are doing their part by providing their knowledge to researchers from their lived experience.  It’s a win-win for us to work together through PVN to make sure our input drives improvements.