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Because your voice matters.

Teen Concussion Recovery Working Group

Posted

Closed

Open to Provincial Region, Patient partners from BC or Yukon

Posted

Teens with lived experience of concussion and their caregivers needed for research working group.

Opportunity Purpose
The MyGuide Concussion-Teen Edition website was created to help teens recover after concussion. The website addresses teen-specific concerns and can be used by teens and their families, as well as by teachers and coaches. Teens with lived experience of concussion, along with their caregivers, are invited to join a virtual working group to review the website and help to develop a research study investigating its acceptability and utility.

Background
After concussion, as many as 35% of youth develop persisting symptoms that can interfere with several key areas of life (e.g., school attendance, family relationships, well-being). Although early intervention can improve outcomes after injury, many adolescents in BC cannot access the treatment they need in a timely and effective way. To address this problem, we developed the MyGuide Concussion-Teen Edition website for adolescents ages 12-18. The purpose of the website is to provide adolescents with a customizable tool that provides psychoeducation about concussion recovery, actionable guidance on how to manage specific symptoms, and an individual recovery plan for returning to activities. This project will investigate the acceptability, user-friendliness, and credibility of the website, as well as identify barriers that could limit its uptake by adolescents and their caregivers.

Eligibility
Youth ages 12 to 18 who have experienced a concussion and are at least one-month post-injury. Parents and/or legal guardians of a child aged 12 to 18 who has experienced a concussion. Caregivers and youth may participate in this opportunity together (e.g., as a caregiver-adolescent pair) or individually. Adolescents and caregivers should be comfortable with computers and technology and able to read and understand English. Patient partners will be compensated $25 per 1-hour group meeting (e.g., up to $125). A reference letter can be provided for high school students completing volunteer/career preparation requirements.

Open to: residents of BC or Yukon only.

Details
Teens and their caregivers will attend five virtual meetings with GF Strong clinicians and researchers to:
(1) identify important questions to ask study participants about the MyGuide Concussion-Teen Edition website;
(2) ensure that study materials are understandable to teens and caregivers;
(3) develop a study recruitment plan;
(4) generate ideas about how the website can be better designed based on data collected from the study; and
(5) decide how to share the research findings with the community.
To prepare for meetings, patient partners may be asked to review materials (e.g., the existing MyGuide Concussion-Teen Edition website, recruitment flyers, research summaries).

Health Areas
Traumatic Brain Injury , Other Rehabilitation Intervention, Digital Health, Rural Health

Eligibility
Age: 12 Years – 100 Years Old

From Our Community

Laura Klein

Clinical Practice Consultant in Fraser Health

Laura Klein

Seeking the patient perspective doesn’t have to be complicated; it simply entails a commitment to ask and listen. Patient advisors not only bring a valuable perspective but also share original ideas and unique skills. Including the patient and family perspective changes the conversation and aligns the team’s focus towards common goals.