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Because your voice matters.

Photo Study for Asian People with Endometriosis

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Open to Provincial Region

Last updated

A Photovoice Study of East, South, and Southeast Asian People with Endometriosis

Health Areas
Complementary/ Alternative Medicine, Imaging, Surgery, Other Diagnosis and Therapy, Health Services and Policy, Health Technology, Primary Health Care, Public Health, Social Determinants of Health, Other Health Systems and Technology, Other Mental Health , Endometriosis, Menstruation and Premenstrual Syndrome, Reproduction and Sexual Health, Other COVID-19, Digital Health, Virtual Health, Patient-initiated research, Rural Health

Study Purpose
In this study, we will use an arts-based approach (Photovoice) to gather the experiences of East, South, and Southeast Asian people with endometriosis during the pandemic. We have a specific interest in mental health, quality of life, accessing and/or utilizing supports or health care services, and social determinants of health.

Details
Participants will take 8-10 photographs that show their experiences of endometriosis during the pandemic. They will create 1-2 sentence captions for each photo, and submit the photos and captions to the research team. Lastly, they will partake in an individual, in-depth interview with one of our research team members to discuss their photos. Photos and captions submitted by participants may be shared in virtual and/or in-person exhibits.

Eligibility
Age: 19 Years – 100 Years Old
Accepting Healthy Volunteers: No

From Our Community

Derek Koch

Spiritual Health Practitioner and Patient- and Family-Centred Care Lead — Kelowna General Hospital

Derek Koch

The bottom line is because we’re caring for patients. People who know best are those who are receiving the care so it makes logical sense that we would consult with them about their experiences. By connecting with PVN we have been able to educate our teams about the value of patient partners and how important their perspective is in our services.