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Because your voice matters.

Patient Partners and Caregivers that have Lived Experience with Stroke or Traumatic Brain Injury and are Also Dealing with Trauma to Contribute to Guidelines for Neurorehabilitation

Posted • Last updated


Open to Vancouver Island Region

Last updated

Brain Rehabilitation Guideline Development

Health Areas
Stroke, Traumatic Brain Injury , Neurological Rehabilitation

Opportunity Purpose
Neurorehabilitation is meant to help people heal from a stroke or traumatic brain injury (TBI). However, sometimes participation can be difficult for people who have also experienced significant psychological trauma. We are bringing together a team of rehabilitation professionals, researchers and Patient Partners (including caregivers) to create guidelines to make neurorehabilitation more accessible for people who have also experienced trauma.

Patient Partners (including caregivers) will contribute alongside other researchers and clinicians to guideline development for neurorehabilitation. Following orientation and training, the Patient Partners will be provided material to read. Patient Partners will be asked to participate in an individual interview and to complete a questionnaire based on their lived experience. All can be done online/remotely.

Age: 19 Years – 65 Years Old

From Our Community

Shana Ooms

Executive Director of Primary Care Strategy, Policy and Quality — BC Ministry of Health

Shana Ooms

Where those of us in the room may have debated policy or wording, patient voices made sure patients were top of mind. And as a result, significant improvements were made to simplify something that was otherwise complex. Patient voices at the table bring us back to reality in terms of what we are trying to achieve.