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Because your voice matters.

Patient Partners and Caregivers that have Lived Experience with Stroke or Traumatic Brain Injury and are Also Dealing with Trauma to Contribute to Guidelines for Neurorehabilitation

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Open to Vancouver Island Region

Last updated

Brain Rehabilitation Guideline Development

Health Areas
Stroke, Traumatic Brain Injury , Neurological Rehabilitation

Opportunity Purpose
Neurorehabilitation is meant to help people heal from a stroke or traumatic brain injury (TBI). However, sometimes participation can be difficult for people who have also experienced significant psychological trauma. We are bringing together a team of rehabilitation professionals, researchers and Patient Partners (including caregivers) to create guidelines to make neurorehabilitation more accessible for people who have also experienced trauma.

Details
Patient Partners (including caregivers) will contribute alongside other researchers and clinicians to guideline development for neurorehabilitation. Following orientation and training, the Patient Partners will be provided material to read. Patient Partners will be asked to participate in an individual interview and to complete a questionnaire based on their lived experience. All can be done online/remotely.

Eligibility
Age: 19 Years – 65 Years Old

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.