Posted
Deadline: Apply by
Open to Provincial Region
Posted
Everyday Pain Experiences in Autistic Young People
Health Areas
Chronic Pain, Autism, Other General Health , Other Men’s Health , Other Mental Health , Other Women’s Health, Patient-initiated research
Opportunity Purpose
Hello There! Autistic children and young adults are at a higher risk of pain experiences, but very little is known about how autistic young people experience everyday pain. It is important to have the input and voices of autistic folks and their caregivers to help power and guide this project to be mindful and meaningful to the community this research study will serve.
Details
What your involvement could look like?
• Participating in team meetings, responding to communications, reading and providing feedback on written documents, co-creating materials (e.g. infographics, summaries, art pieces)
• Sharing lived experience and knowledge of your own and/or family member’s journey with pain
• Helping identify what needs to be improved to help fill in the gaps in the health care and needs of autistic children and youth.
Background
After you express interest, our team will contact you to schedule a one-on-one meet-and-greet (via phone or Zoom, depending on your preference) with our patient partner coordinator.
We’ll go over the details, and if you’d like to proceed, we will finalize your onboarding and communicate in whatever way works best for you!
Additional eligibility criteria
We are looking for:
– autistic people (ages 8 – 30) who live with or has an interest in chronic pain
– caregivers (no age limit) of autistic youth who live with or has an interest in chronic pain
You will need
– reliable internet access and the ability to use video conferencing software
Location
Vancouver Island / Coast
Lower Mainland
Thompson – Okanagan
Kootenay
Cariboo
North Coast and Nechako
Northeast
Eligibility
Age: 8 Years – 100 Years Old
