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Because your voice matters.

Advancing Precision Stroke Prevention Through Real-World Adherence Science

Posted • Last updated

Deadline: Apply by

Open to Provincial Region

Last updated

Who Is Most Harmed by Missed AFib Medication – and How Can We Help?

Health Areas
Atrial Fibrillation

Opportunity Purpose
We will find out how much anticoagulant nonadherence causes strokes and deaths in people with Afib, how the timing of missed doses matters and which patients are harmed the most. For example, are certain types of people (e.g., by sex and gender, income levels, rural/urban residence, age category, race/ethnicity) harmed more than others? Then we will build our results into an online risk calculator for patients and clinicians.

Background
Project documents will be provided and an initial orientation phone call will be provided.

Details
After you express interest, our team will contact you to learn about your interest, confirm eligibility, share further study details, and outline next steps. Patient partners’ roles depend on their skills and interests. Their primary role is to help with interpreting and communicating the study findings by recommending ways and places to share the results, helping us write information for patient groups, and helping us develop reports of the results that are easily understood by the public. For those who are interested, we would also appreciate input from patient partners on how to make our analyses (and therefore our results) more relevant to the interests of people living with Afib.

Additional eligibility criteria
• Ideally, people living with atrial fibrillation AND who are current prescribed an oral anticoagulant medication (warfarin, dabigatran, rivaroxaban, apixaban, or edoxaban).
• Ability to read and understand English.
• Comfortable enough with computers and technology to participate in a video call.

Location
Vancouver Island / Coast
Lower Mainland
Thompson – Okanagan
Kootenay
Cariboo
North Coast and Nechako
Northeast

Eligibility
Age: 45 Years – 99 Years Old

From Our Community

Christine Wallsworth

Patient Partner, Vancouver

Christine Wallsworth

Patient and family partners should not be a check box on research proposals! They need to be involved right from the start. I know patient and family partners are doing their part by providing their knowledge to researchers from their lived experience.  It’s a win-win for us to work together through PVN to make sure our input drives improvements.