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Because your voice matters.

Survey – Brain and Heart Failure Priority Setting Partnership (“Brain-HF PSP”)

Posted

Deadline: Apply by

Commitment: Short-term

Connection method: Virtual

Open to National Region, Provincial Region

Posted

You are being asked to participate because you have lived or living experience (as a patient, caregiver, or health care professional) of heart failure.

Your heart and your brain are intimately connected. People with heart failure may experience changes to their brain, their thinking, or their mental health. We call these the ‘brain implications’ of heart failure. What limited information we know about the connection between heart failure and its ‘brain implications’ is driven by researchers’ questions. We have not yet considered the questions of those who are directly affected.

The purpose of this project is to engage patients, caregivers and health care professionals in identifying Brain-HF research priorities. Our goal is to produce a top 10 list of research questions that people with heart failure, their support networks (families, partners, friends) and health care professionals agree are the most important for research to address on the ‘brain implications’ of heart failure. We will share these research priorities to funding agencies, health care leaders, and partner organizations to ensure targets for future brain-heart failure research in Canada are relevant, representative, meaningful, and have the potential for real impact among those who are directly affected.

If you have any questions about taking part in this study, you may contact the Principal Investigator who oversees the study at this institution: Dr. Karen Bouchard, 613-696-7000 ext. 10998

If you have questions about your rights as a participant or about ethical issues related to this study, you can talk to someone who is not involved in the study at all. Please contact The Ottawa Health Science Network Research Ethics Board, Chairperson at 613-798-5555 extension 16719 or rebadministration@toh.ca.

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From Our Community

Layton Engwer

Patient Partner, Sooke

Layton Engwer

PVN helped empower me to make meaningful contributions to Primary Care (PC) locally and provincially.  It also facilitated creation of PC Patient Voices which is focused on PC and provides education support and building on shared experiences.