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Because your voice matters.

Patient Partner, Stroke Research Project Working Group

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Open to Fraser – Vancouver Coastal, Patient partners in Fraser Health communities

Last updated

Every minute counts when you’re having a stroke. Understanding the lived experience of you or your loved one who has had a stroke helps improve stroke care, so Simon Fraser University and Fraser Health are inviting two patient partners to co-design their stroke research project.

Open to: Patient partners in Fraser Health communities

Lead Organization or Department

Simon Fraser University | Fraser Health

Aim

The objective of this study is to partner with patients with lived experience of stroke to design the research project. The patient partners will participate in the discussion of methodology, interpretation of research findings, research manuscript preparation and proofreading, patient-driven narratives and translation efforts.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.  

Eligibility

- patients that have had a stroke - excels at working in a team environment and sharing input - open to meeting in person, teleconference and/or email ** Knowledge about research participation and/or science background is a bonus, but not mandatory If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

Vacancies: 2 Date/time: To be determined with patient partners Location: Via telephone and in-person, in the Surrey area Commitment: Seven months to a year, 2-3 hours a month

Reimbursement

Preapproved expenses related to travel to in person meetings will be reimbursed (including mileage, parking and/or public transit). Other reimbursements may be discussed with successful patient partners directly once placed.

Background

Stroke can be caused by either of two things – the blood supply in the brain is blocked (ischemic stroke) or there is bleeding inside the brain (hemorrhagic stroke). The second type is worse and lead to death more often. However, it is not very clear and well-understood how the way stroke is caused affects recovery or if patients are even aware of this. In this study, we aim to work with patient partners to understand this question by looking at pictures of the brain (acquired using a special machine called MRI) at various period following the different types of stroke.

Engagement Leader Contact Information

Rableen Nagra, MA
Patient Engagement Specialist, Fraser Centre – BC Support Unit
Mobile: 778-238-6418
Email: rableen.nagra@fraserhealth.ca

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.