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Because your voice matters.

Patient Partner, Transplant First Virtual Class Redesign Working Group – Fraser Health

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Closed

Commitment: Short-term

Connection method: Virtual

Open to Fraser Valley & Lower Mainland

Last updated

Volunteer Opportunity
Learning about the benefits of kidney transplant supports decision-making for people with chronic kidney disease and can potentially improve their health outcomes. Fraser Health’s Virtual Health and Renal Kidney Care teams are seeking two patient partners to share their experiences to support the development of a virtual education class for patients with interactive features and discussions.

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Lead Organization/Department
Fraser Health

Aim
• To redesign the Transplant First class education to improve learner engagement, satisfaction, and learning outcomes while using the interactive features of an online video environment.
• Patient partners will offer their unique perspective and insight and help guide the development of a virtual learning pathway that includes what matters to patients, families and caregiver on this journey.

Level of Engagement
This opportunity is at the level of involve on the spectrum of engagement. The promise to you is that the health care partner will involve patients in planning and design phases to ensure ideas or concerns are considered and reflected in alternatives and recommendations.

 Eligibility
Open to volunteers from across Fraser Health who:
• Have experience with kidney transplant processes & decision-making, either as a recipient or donor.
• Are comfortable telling their story.

If you have a strong interest in this work but have not yet completed a PVN orientation and Patient Partner Commitment, are unsure if your experience is a good fit, please contact Jami Brown directly.

There will be an informal conversation about the opportunity. The goal is to find the best fit for all involved.

Logistics
• Number of vacancies: 2
• Date/Time: Mid-week meetings between 9am and 4pm, based upon patient partner and clinical staff availability. All efforts will be made to accommodate everyone’s schedules while keeping the project timeline on track.
• Commitment: 2-4 meetings total in July-August for consultation, discussion and review of learning goals/objectives.
• Location: Virtual meetings done using Microsoft Teams or Zoom. Meeting invitations, notes, and project updates to be distributed by email.

Reimbursement
Travel expenses will be covered according to the Fraser Health travel policy. If you meet the eligibility criteria, but have concerns about your ability to participate, please contact Jami Brown- jbrown@bcpsqc.ca to see if support options are available. We are always seeking to better understand and reduce barriers to participation.

Background
The Provincial B.C. Renal program supports health care services in collaboration with health authorities across the province. In Fraser Health, our Kidney Care Clinics have identified an opportunity to provide some patient education in a virtual format to allow groups of patient’s better access to the information. The Kidney Care Clinics have chosen to focus on the new ‘Transplant First’ curriculum, as this is a priority education shift for the province.

‘Transplant First’ education is for patients who are diagnosed with chronic kidney disease and have a Glomerular Filtration Rate (GFR) of less than 25 on their lab tests. The curriculum highlights the types of kidney transplants, the benefit of finding living donors, the processes of searching for, and engaging with potential donors, and what to expect after surgery.

The goal of the Transplant First initiative is to improve the health outcomes of patients with chronic kidney disease by helping them realize the benefits of transplant over dialysis, get important information earlier, and to be able to decide about living donor transplant earlier in their patient journey.

The goals are:
• Redesign the ‘Transplant First’ education activities to make them more engaging, visual, and interactive.
• Support clinicians that teach ‘Transplant First’ to hear what matters to patient partners when they learn virtually, while also supporting clinicians’ virtual class facilitation skills development.
• Redesign the ‘Transplant First’ class to respect adult learners in their individual experiences and journeys with kidney disease, while demonstrating how they can use existing provincial resources.
• Design learning to include social connections, peer support and peer learning to maximize the sense of patient community in ongoing health and wellness.

Engagement Leader Contact Information

Jami Brown | BA, MAPC (she/her/hers) Engagement Leader BC Patient Safety & Quality Council 604.510.0449 jbrown@bcpsqc.ca

From Our Community

Laura Klein

Clinical Practice Consultant in Fraser Health

Laura Klein

Seeking the patient perspective doesn’t have to be complicated; it simply entails a commitment to ask and listen. Patient advisors not only bring a valuable perspective but also share original ideas and unique skills. Including the patient and family perspective changes the conversation and aligns the team’s focus towards common goals.