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Because your voice matters.

Patient Partner, Team Palliative Care – Providence Health Care Research Challenge

Posted

Closed

Commitment: Long-term

Connection method: Virtual

Open to Fraser – Vancouver Coastal

Posted

There is no RSVP for this opportunity. Please email Jami at jbrown@bcpsqc.ca if you are interested.

Volunteer Opportunity
The right to have a supported death in long term care with families present was severely impacted during COVID-19. A palliative care team at Providence Health Care (PHC) are seeking two patient partners to provide input into a research project to investigate the impacts of this policy change as part of the PHC Research Challenge.

Lead Organization/Department
Palliative Care – Providence Health Care

Aim
• To examine the experiences of loved ones visiting patients at the end of life during COVID-19 visitor restrictions
• Patient partners will offer their unique perspective and insight and help guide our inquiry

This project is a proposal for the Providence Health Care Research Challenge. It will only proceed if it is accepted into the challenge.

Level of Engagement
This opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.

 Eligibility
Open to volunteers from across the province who:
• Have experience with palliative or end of life care, or visiting during COVID 19 restrictions
• Are comfortable telling their story
• Can meet using Zoom

There will be an informal conversation about the opportunity and determination of the best fit for both patient and health care partners prior to placement.

Logistics
• Number of vacancies: 2
• Date/Time: To be determined with the patient partner. Start time would be in early June
• Commitment: About four hours per month, with some reading prior to meetings via email, for about six months
• Location: Virtual, via zoom

Reimbursement
No out-of-pocket expenses are anticipated for this engagement opportunity. However, if you meet the eligibility criteria, but have concerns about your ability to participate, please contact Jami Brown- jbrown@bcpsqc.ca to see if support options are available. We are always seeking to better understand and reduce barriers to participation.

Background
This team is made up of six palliative care nurses and one quality improvement consultant who have observed the challenges with visiting during the pandemic for families. We want to learn more about how changes in family presence policies during COVID-19 have impacted palliative and end of life care for families. The team is forming a research question and seeking to include either surveys or interview questions. We come from a Palliative care background but work in acute palliative care, long term care and hospice.

Engagement Leader Contact Information

Jami Brown | BA, MAPC (she/her/hers)
Engagement Leader
BC Patient Safety & Quality Council
604.510.0449
jbrown@bcpsqc.ca

From Our Community

Shannon Griffin

Leader, Patient and Family Centred Care in Fraser Health

Shannon Griffin

Recently, a PVN Patient Advisor asked healthcare partners, “What are we learning from patients, families, and others thus far during this pandemic?”. This is an excellent question and one to ask ourselves daily.