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Patient Partner, Home Support Service Delivery Working Group

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Open to Fraser – Vancouver Coastal, Patient partners in Fraser Health communities

Last updated

According to recent reports, BC is home to about 678,000 people 65 and over. By 2020, that number is expected to grow to 984,000, and will be at nearly 1.5 million by 2036. With the population of older adults increasing in BC, the use home support services will continue to grow.  A team of researchers are looking for two patient partners with experience as a caregiver or a senior living at home to contribute their insight as they look at home support service delivery in Fraser Health.

Open to: Patient partners in Fraser Health communities

Lead Organization or Department

Fraser Health, Surrey Memorial Hospital & Research & Innovation, Health and Technology District

Aim

This project aims to understand the healthcare needs of older people living in the community, the available technologies to monitoring frailty at home settings, and the challenges to realize early detection and management of frailty early. Patient partners will:
  • Provide insight and develop suggestions for study question and interview questions;
  • Assist with interpreting the results; and
  • Help with translating study-related documents to simple, easy to understand language.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the research partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.  

Eligibility

This invitation is being extended to volunteers in Fraser Health communities who are:
  • A senior who lives at home or a caregiver of a senior who lives at home
  • Comfortable telling their story and working within a team environment
  • Open to meeting in person and then via teleconference and/or email;
  • Proofreading skills would be an asset, but not a requirement
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

Vacancies: 2 Date/Time: The first in person meeting will take place end of August and then the meetings will take place in a combination of in person and teleconference Location: Via telephone and in-person, in the North Surrey area Commitment: One week to six months for approximately 3-4 hours per month to participate in research meetings and discussions, as well as proofreading brief research summaries

Reimbursement

Pre-approved expenses related to travel to in-person meetings will be reimbursed (including mileage, parking, tolls and/or public transit). Refreshments will be provided at in-person meetings.

Background

There is growing evidence that frailty assessments are needed in community and residential settings to support the aging Canadian population. The goal of this research is to enhance multidisciplinary partnerships and stakeholders working together to create evidence through focus group discussion meetings. The purpose of this study is to identify and use the: 1) resources available to monitor frailty and health status in home settings 2) people, systems, and structures available and ready to monitor deficits accumulation 3) data collected to inform decision-making for the development of a dynamic electronic frailty index to continuously and dynamically monitor frailty in home and community environments The members of the research team include: Dr. Xiaowei Song (Fraser Health Principal Investigator), Rowena Rizzotti (Research User Principal Investigator), Joanna Marie Rivera (SFU Master of Public Health Candidate), Dr. Carlo Menon, Dr. Ryan D'Arcy, Dr. Bimal Lakhani, Dr. Grace Park, Antonina Garm, (FH CARES), and Andrew McDonald (UBC Medical Degree Candidate)

Engagement Leader Contact Information

Rableen Nagra, MA
Patient Engagement Specialist, Fraser Centre – BC Support Unit
Mobile: 604-613-4794
Email: rableen.nagra@fraserhealth.ca

Jami Brown
Engagement Leader, Patient and Public Engagement | Fraser Valley
604.510.0449
jbrown@bcpsqc.ca

From Our Community

Agnes Black

Director, Health Services & Clinical Research and Knowledge Translation – Providence Health Care

Agnes Black

It’s really hard to make changes in health care. When a PVN patient partner says, ‘This is important to us’ it keeps us grounded on why a change is needed and keeps us motivated to keep going on projects.