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Patient Partner, Better Care for Epilepsy Research Project

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Open to Fraser – Vancouver Coastal, Patient partners in the Lower Mainland and Fraser Valley

Last updated

Neurologists are key team members in diagnostic work-up, prognosis and successful treatment of epilepsy. To improve neurological assessment of patients, a collaborative team at Simon Fraser University and Fraser Health Authority is seeking two patient partners to share their lived experience with epilepsy to help develop a decision support system that highlights medical emergencies through the reading of electroencephalographic (EEG) recordings enhanced through artificial intelligence.

Open to: Patient partners in the Lower Mainland and Fraser Valley

Lead Organization or Department

Simon Fraser University

Aim

  • A key goal is to build a decision support system to prime neurologists on their interpretation of electroencephalographic (EEG) recordings through artificial intelligence.
  • Patient partners will help prioritize our research questions, advise on lived experience and participate in meetings.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

Open to volunteers in the Lower Mainland and Fraser Valley who:
  • have experience with epilepsy as a patient or caregiver
  • are interested in health research
  • thrive in a team environment
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

  • Vacancies: 2
  • Date/Time: To be determined with patient partners
  • Location: Via telephone, video conference, email and in-person
  • Commitment: Once a month, 2 hours each, with document review prior to meeting, 7 months to 1 year

Reimbursement

Out-of-pocket expenses (mileage, transit fares, parking) will be reimbursed. In addition, compensation will be discussed with the patient partner on an individual basis.

Engagement Leader Contact Information

Alia Januwalla
BC SUPPORT Unit – Fraser Centre
604.587.4600 ext. 765870
alia.januwalla@fraserhealth.ca

From Our Community

Laura Parmar

Physician Quality Improvement Coach — Northern Health

Laura Palmer

It has been so rewarding to go from an idea to working with such a great group of dedicated people from so many different organizations towards a very fun and rewarding project. Several extremely engaged PVN members expressed interest in being part of piloting a patient virtual care peer support system. I am confident that this is the beginning of many more exciting collaborations!