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Patient Partner, Better Care for Epilepsy Research Project

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Open to Fraser – Vancouver Coastal, Patient partners in the Lower Mainland and Fraser Valley

Last updated

Neurologists are key team members in diagnostic work-up, prognosis and successful treatment of epilepsy. To improve neurological assessment of patients, a collaborative team at Simon Fraser University and Fraser Health Authority is seeking two patient partners to share their lived experience with epilepsy to help develop a decision support system that highlights medical emergencies through the reading of electroencephalographic (EEG) recordings enhanced through artificial intelligence.

Open to: Patient partners in the Lower Mainland and Fraser Valley

Lead Organization or Department

Simon Fraser University

Aim

  • A key goal is to build a decision support system to prime neurologists on their interpretation of electroencephalographic (EEG) recordings through artificial intelligence.
  • Patient partners will help prioritize our research questions, advise on lived experience and participate in meetings.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

Open to volunteers in the Lower Mainland and Fraser Valley who:
  • have experience with epilepsy as a patient or caregiver
  • are interested in health research
  • thrive in a team environment
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

  • Vacancies: 2
  • Date/Time: To be determined with patient partners
  • Location: Via telephone, video conference, email and in-person
  • Commitment: Once a month, 2 hours each, with document review prior to meeting, 7 months to 1 year

Reimbursement

Out-of-pocket expenses (mileage, transit fares, parking) will be reimbursed. In addition, compensation will be discussed with the patient partner on an individual basis.

Health Care Partner Contact Information

Alia Januwalla
BC SUPPORT Unit – Fraser Centre
604.587.4600 ext. 765870
alia.januwalla@fraserhealth.ca

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PVN helped empower me to make meaningful contributions to Primary Care (PC) locally and provincially.  It also facilitated creation of PC Patient Voices which is focused on PC and provides education support and building on shared experiences.

Members of the BCPSQC pose for a team photo at the Quality Forum 2019.

Health Quality BC administers the Patient Voices Network. Using evidence-informed strategies, the Council shifts culture, improves clinical practice and advances person- and family-centred care to support high-quality care for every person in our province.