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Because your voice matters.

Patient Partner, Advance Care Planning Research Team

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Open to Fraser – Vancouver Coastal, Patient partners in Fraser Health communities

Last updated

Ensuring your values and beliefs are reflected upon and discussed, so your health care choices are known to your family/friends is what advance care planning is all about. The Fraser Health Advance Care Planning research team are seeking two patient partners to help them identify what’s important to patients and families when having these advance care planning conversations.

Open to: Patient partners in Fraser Health communities

Lead Organization or Department

Fraser Health, Advance Care Planning (ACP) Team

Aim

To explore what ACP success looks like with and for individual people, as well as their friends and families. For example, what does success around the kitchen table look like? And what do people and families want from the ACP processes? Patient partners will share their thoughts and experiences as part of the research team to ensure the research is reflective of the patients’ and families’ needs.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.  

Eligibility

Open to patient partners with experience in:
  • Discussing advance care planning with friends, family or health care providers or an interest in early, proactive planning for future health care
  • Telling their story
  • Working with large groups
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

  • Vacancies: 2
  • Date/time: To be determined with patient partners
  • Location: Via telephone, web conferences and in-person
  • Commitment: Once a month, 2-3 hours, for up to 6 months, with the potential for an extension

Reimbursement

Out of pocket expenses (mileage, transit fares, parking) will be reimbursed. In addition, compensation will be discussed with the patient partner on an individual basis.

Background

There is increasing interest in advance care planning yet there is a gap in the literature about what matters to people during this early part of this process. Fraser Health recently received funding to expand the ACP team. Our research is aimed at how “measure success” with individuals and their support network. For more information, please see: Fraser Health: www.fraserhealth.ca/acp National ACP: www.advancecareplanning.ca Provincial/BC: https://www2.gov.bc.ca/gov/content/family-social-supports/seniors/health-safety/advance-care-planning People’s Law School: https://www.peopleslawschool.ca/everyday-legal-problems/planning-your-future/start-your-planning-here

Engagement Leader Contact Information

Rableen Nagra, MA
Patient Engagement Specialist, Fraser Centre – BC Support Unit
Phone: 604-587-4600 ext. 765870
Email: rableen.nagra@fraserhealth.ca

From Our Community

Christine Wallsworth

Patient Partner, Vancouver

Christine Wallsworth

Patient and family partners should not be a check box on research proposals! They need to be involved right from the start. I know patient and family partners are doing their part by providing their knowledge to researchers from their lived experience.  It’s a win-win for us to work together through PVN to make sure our input drives improvements.