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Open to Fraser – Vancouver Coastal, Patient partners in the Lower Mainland & Fraser Valley
Have you had a family member with a serious illness admitted to the hospital? Did the hospital care providers explore goals, fears, priorities, acceptable trade-offs, and family understanding of the illness? Help our research project to improve early engagement in serious illness conversations at St. Paul’s Hospital, so that patients’ voices are heard and they’re treated how they want to be treated.
Open to: Patient partners in the Lower Mainland & Fraser Valley
Lead Organization or DepartmentProvidence Health Care, St. Paul's Hospital — Acute Medicine, Nursing
AimOur research project aims to increase engagement in early serious illness conversations on medical units, so that patient goals and wishes can be addressed before it's too late, such as if the patient becomes too sick to talk or stay awake. We are recruiting patient partners to share their story of a serious illness conversation (or lack of) when it was needed during their family member's hospitalization.
Level of EngagementThis opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.
- Comfortable sharing your story with ~10 staff on a medical unit
- Care experience with Providence Health Care or the Vancouver area hospitals is preferred
- Experience with a family member being hospitalised for a serious illness (serious illness is a condition that carries a high risk for death, and may cause physical, mental, and social strains on the patient's life)
- Access to a computer for emails is required
LogisticsNumber of vacancies: 2 Where: St. Paul's Hospital in downtown Vancouver Commitment: Share the story about your experience of a family member being hospitalised for a serious illness and and experience. Date TBA, most likely March 29, 2019, to an audience of ~10 staff on medical unit.
ReimbursementExpenses related to travel (e.g. transit, parking up to $18/day, approved mileage up to 60 km each way) to attend meetings will be reimbursed by Providence Health Care.
BackgroundOur project hopes to promote “more, earlier, and better” serious illness conversations to minimize discrepancies between patients’ wishes and actual end-of-life care. We saw that patients on our units were getting sicker, and some were going through treatments that caused pain and suffering. We also saw that many of these sick patients didn't get a chance to voice their wishes, where they otherwise may have not wanted all these painful treatments. We aim to address these issues on our acute care units through our research project. This opportunity has come about as part of the Providence Health Care Research Challenge. The team consists of a manager, social workers, and front-line nurses. Read more on the components of a serious illness conversation as developed by Ariadne Labs here.
Engagement Leader Contact Information
Engagement Leader, Patient and Public Engagement | Lower Mainland & Sunshine Coast