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Participant, Patient Health Plan Focus Group – Improvement Project

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Open to Interior Region, Patient partners from Penticton and surrounding area

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If you are a client at the renal clinic at the Penticton Integrated Health centre and have been given the Patient Health Plan, we would like your input on the success of this document and to have an opportunity to provide recommendations for improvement.

Open to: Patient partners from Penticton and surrounding area

Lead Organization or Department

Interior Health - Renal Services

Aim

To provide renal patients with a document that encourages 2-way conversation between the renal patient and their health care provider which is used to assist renal patients achieve their personal goals. As a patient partner, you will be able to inform us why the form is working in the clinic you attend for your kidney care, by participating in an open discussion about the form your nurse has used, and offer opinions for improvement.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the research partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.
  • The patient partners should be followed by the chronic kidney disease (CKD) clinic at the Penticton Integrated Health unit.
  • The patient partners should have some comfort in a group setting with strangers. (The group will be about 6-10 including 2 project leads, 2 CCMI representatives, 1-2 nephrologists and 2 clinicians from PIH; the patient will know their nephrologist and the clinicians).

Logistics

  • Vacancies: 1-3
  • Location: Penticton Regional Hospital or Penticton Integrated Health centre (dependent on room availability)
  • Date: May 16, 2018 (tentative)
  • Time: 09:30-14:30
  • This is a one-time event
  • Preference is for patient partners to attend in-person, teleconference option will be available

Reimbursement

Lunch and parking costs will be covered.

Background

The provincial renal association asked Interior Health to take the lead on developing the Patient Health Plan document that would be used in all renal programs throughout the province to ensure health care providers are addressing the patient goals as opposed to doing a medical assessment only (i.e. reviewing blood work, vital signs, symptoms). The document was implemented in 2017 but with little uptake success, although the CKD clinic in Penticton has had very good success. For this reason we want to explore why and how the Penticton Integrated Health Clinic CKD program has experienced this success and use lessons learned to support other renal programs; by engaging with patient partners, their perspective will inform this process. Every effort will be made to ensure the patient partners feel welcomed and that their opinions/recommendations/comments are important; the focus group facilitators will use their expertise to support patient engagement. While the use of the Patient Health Plan is directed at all renal patients (those receiving dialysis, had a kidney transplant, and non-dialysis), the current focus of this initiative is to kidney patients who are being followed in the chronic kidney disease clinics. Chronic Kidney Disease Patient Health Plan

Engagement Leader Contact Information

Carol Stathers
Engagement Leader, Patient and Public Engagement | Okanagan, Interior Region
778.516.3308
cstathers@bcpsqc.ca

From Our Community

Lucie Neliba

Patient Partner, Surrey

Lucie Neliba

The Patient Voices Network has connected me to a community with the same drive to bring person- and family-centred care to the forefront. I am grateful for all opportunities I have been a part of thanks to PVN, which positively impacts patients like my sister and their caregivers. No matter how small, all patient engagement will help shape the future of health care and that I can stand behind