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Because your voice matters.

Participant, “Long COVID” (post-acute COVID-19 syndrome) Focus Group – Providence Health Care

Posted • Last updated

Closed

Commitment: Short-term

Connection method: Virtual

Open to Provincial Region

Last updated

No RSVP form for this Opportunity: Email jbrown@bcpsqc.ca if interested.

Volunteer Opportunity
Providing the best care for patients who have had COVID-19 involves understanding what matters to them. BC’s Post-COVID-19 Interdisciplinary Clinical Care Network (PC-ICCN) is asking patients who have had COVID-19 symptoms lasting at least 3 months to participate in a focus group. Input from the group will help shape an education program for family doctors and other health care providers.

Lead Organization/Department
Shared Care Committee – Providence Health Care

Aim
• To develop education for family doctors and other health care providers on what matters to patients who have had COVID-19 symptoms lasting at least 3 months.
Patient partners will share their lived experience with COVID-19 to inform the development of these education tools.

Level of Engagement
This opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.

 Eligibility
Patient Partners from across BC who:
Have experienced COVID-related symptoms for at least 3 months.
Tested positive for COVID-19, or have been sick between January and May 2020 and not had access to a COVID-19 test.
Are comfortable participating in a focus group via Zoom

There will be an informal conversation about the opportunity and determination of the best fit for both patient and health care partners prior to placement.

Logistics
• Number of vacancies: 6
Date/Time: To be shared once patient partners are confirmed
Location: Virtual via Zoom Video Conferencing
Commitment: One time, one-hour meeting, with possible follow-up for clarification

Reimbursement
No expenses are anticipated. However, we are always seeking to understand and reduce barriers to participation. If you meet the eligibility and would like to be considered for this opportunity, but have concerns about your ability to participate, please contact Jami Brown – jbrown@bcpsqc.ca to see if there are support options possible.

Background
Little is known about best care for COVID -19 survivors, nor the short, medium, or long-term consequences of COVID-19 infection. COVID-19 survivors will require coordination of clinical care in an organized way. With such intensive multidisciplinary follow-up, people with COVID-19 may be challenged by both the direct medical consequences of their disease and by navigating a complex healthcare landscape. Without a sensitive, shared care coordinated approach to care, this may result in patients not receiving the care they need, dissatisfaction and mistrust of the healthcare system.

BC’s Post-COVID-19 Interdisciplinary Clinical Care Network (PC-ICCN) believes developing education for family doctors and other health care professionals will support the evolution of COVID-19 care that is more person- and family-centred moving forward.

More information about current practices can be found here.

Engagement Leader Contact Information

Jami Brown | BA, MAPC (she/her/hers)
Engagement Leader
BC Patient Safety & Quality Council
604.510.0449
jbrown@bcpsqc.ca

From Our Community

Laura Klein

Clinical Practice Consultant in Fraser Health

Laura Klein

Seeking the patient perspective doesn’t have to be complicated; it simply entails a commitment to ask and listen. Patient advisors not only bring a valuable perspective but also share original ideas and unique skills. Including the patient and family perspective changes the conversation and aligns the team’s focus towards common goals.