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Because your voice matters.

Participant, Kidney Care Goal Setting Focus Group

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Open to Fraser – Vancouver Coastal, Patient partners in the Lower Mainland & Fraser Valley

Last updated

Are you receiving kidney or dialysis care with Vancouver Coastal Health’s Renal Program? We would love to hear your opinions about setting health-related goals in your care!

Open to: Patient partners in the Lower Mainland & Fraser Valley

Lead Organization or Department

BC Renal

Aim

The goal of the focus group is to understand from patients and family caregivers as well as kidney care professionals: • What does “goal-setting” mean in the context of kidney care? What are the challenges for setting care health-related goals? • What may help improve goal-setting in caring for those living with chronic kidney disease

Level of Engagement

This opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.

Eligibility

•Patients or family caregivers of patients receiving care through a kidney care clinic, hemodialysis unit, peritoneal dialysis or home dialysis in Vancouver Coastal Health Renal Program •We are hoping to hear from diverse voices (e.g. range of age, gender, lived experience of kidney care, geographical, ethnicity) If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

  • Vacancies: 4
  • The focus group will be held at the Gordon and Leslie Diamond Health Care Centre (Vancouver General Hospital campus) in Vancouver on July 29 from 11:30 am-1:30 pm
  • A light lunch will be provided

Reimbursement

BC Renal will reimburse pre-approved transportation costs (transit, mileage, parking). For patient partners coming from the Central Coast, Sunshine Coast, and Sea-to-Sky Corridor (Squamish, Whistler, Pemberton), additional travel and accommodation expenses can be reimbursed. If you have any questions about reimbursement, please let us know. The reimbursement process will take 4-6 weeks.

Background

Goal-setting with patients was identified as an improvement opportunity in provincial patient experience surveys conducted by BC Renal. In follow up to the survey results, BC Renal is organizing a series of focus groups across BC to have an in-depth discussion about goal-setting with patients in various kidney care settings. The focus group will include patients, family caregivers and kidney care professionals from the Vancouver Coastal Health Renal Program.

Engagement Leader Contact Information

Karen Estrin
Engagement Leader, Patient and Public Engagement | Lower Mainland & Sunshine Coast
604.668.8245
kestrin@bcpsqc.ca

From Our Community

Lisa Dyck

Former Manager, BC Emergency Medicine Network

Lisa Dyck

PVN patient partner’s feedback has reinforced the important relationships between patients and providers for emergency care. Our partnership with PVN has brought many new opportunities to adjust how health care and patient partners can work together on BC Emergency Medicine Network priorities.