Member, Secondary Use of Personal Information Working Group

Do you have an interest in helping to create standards for how and when your personal and health information is being used in the health system to improve health outcomes? Our Secondary Use of Personal Information working group needs to know your perspective as informed decision making requires information and your voice matters in the standards we develop to use the information.

Open to: Patient partners across British Columbia

Lead Organization or Department

Freedom of Information, Privacy & Policy Development

Aim

The Secondary Use of Private Information Working group is a provincial working group to develop standards and consistency of using personal and health information for purposes other than providing care. Examples include research and quality improvement initiatives within the health system. Secondary use of private information is necessary to improve health outcomes; however governance is needed to ensure transparency, privacy and accountability of policy developers. We need your perspective to ensure reasonable standards are developed around the use of information without consent while respecting privacy. This includes standards on anonymity when possible and appropriate oversight when it is not.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the research partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

Some knowledge or experience with data analysis, program development or planning in a business is ideal. If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

• Vacancies: 2
• Location/Date/Time: First meeting date is yet to be determined
• Format: Potential face to face once a month in Vancouver for up to two hours with a possibility of a bi-weekly teleconference. Tele/video conference will be an option for those outside of the Lower Mainland
• Commitment: Up to one year

Reimbursement

Pre-approved travel and parking expenses will be reimbursed.

Background

There is currently no consistent provincial standard across the health system and no governance for secondary use of private information. This group intends on developing this structure. The Secondary Use of Private Information Working Group is a sub-group formed by the Provincial Information Privacy and Security Standing Committee, a Standing Committee of Health Sector Information Management and Information Technology Standing Committee, which in turn receives its mandate from the BC Health Leadership Council. Please visit this link for more background: https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/ehealth/governance-of-ehealth.

Health Care Partner Contact Information

Jacquelyne Foidart
Engagement Leader, Patient and Public Engagement | Thompson Cariboo
250.879.1077
jfoidart@bcpsqc.ca