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Because your voice matters.

Member, Scotiabank Youth Transition Program Working Group – St. Paul’s Hospital

Posted • Last updated

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Commitment: Long-term

Connection method: Virtual

Open to Fraser – Vancouver Coastal

Last updated

Volunteer Opportunity
Providence Health Care (PHC) is looking for patient partners to join the Scotiabank Youth Transition Program (SYTP) Working Group. Patient partners will collaborate in developing the SYTP and associated resources, to support youth transitioning from pediatric care to multiple clinical areas at St. Paul’s Hospital.

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Lead Organization/Department
Scotiabank Youth Transition Program – Providence Health Care

Aim
Patient partners will:
• Provide input in planning, design and implementation of the SYTP and associated resources.
• Use their experience to inform development of the SYTP so that it is relevant, meaningful and centred on youth patients, families and caregivers.

Level of Engagement
This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility
Open to volunteers who:
• Ideally, have lived and/or living experience with transition from pediatric to adult care at St. Paul’s Hospital (PHC).
• Are comfortable with sharing health care experiences as it relates to transition to adult care, sharing their ideas with a group of health care partners.
• Have interest in youth-friendly, patient & family-centred health care.
• Are comfortable with using Zoom for meetings and receiving documents via email.

If you have a strong interest in this work but have not yet completed a PVN orientation and Volunteer Agreement, or are unsure if your experience is a good fit, please contact Jami Brown directly.

Please note that informal virtual meet & greet may form part of the selection process for short listed patient partners.

Logistics
• Number of vacancies: 3
• Date/Time: December/January start, Dates/times to be determined, in consultation with patient partners & rest of SYTP working group.
• Location: Currently, all meetings will be held virtually.
• Commitment:  The work will include monthly working group meetings held virtually (1.5 hours via zoom) with additional time required outside of these meetings to review materials, including agendas and minutes. Additional correspondence via e-mail in between meetings may also be required.

Reimbursement
Expenses related to travel (i.e., public transit, parking, approved mileage) to attend any in-person meetings at St. Paul’s Hospital will be reimbursed by Providence Health Care.

Background
The Scotiabank Youth Transition Program (SYTP) in partnership with St. Paul’s Hospital is being developed to provide a comprehensive model of care for youth patients to support them, their families, and caregivers, and to ensure they have the skills and confidence to take control of their health as they transition to adult care. The SYTP will provide guidance and direction, and offer a well-defined, supportive pathway and care plan for all clinical areas at PHC that have youth transitioning from pediatric to adult care, including congenital heart disease, Cystic Fibrosis, cochlear implant and kidney, among others.

In Fall 2021, a working group was established to include representatives from programs across PHC and BC Children’s Hospital (BCCH) to develop an overall vision for the SYTP and to begin work on specific resources needed to fulfill that vision. The working group has engaged with the Youth Advisory Committee (YAC) at BCCH to obtain feedback and validation of the work to date.

Health Care Partner Contact Information

Jami Brown | BA, MAPC (she/her/hers) Engagement Leader BC Patient Safety & Quality Council 604.510.0449 jbrown@bcpsqc.ca

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.