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Because your voice matters.

Member, Palliative Care for Patients With Kidney Disease Working Group

Posted • Last updated


Open to Provincial Region, Patient partners across the province

Last updated

Would you be interested in reviewing materials for patients who currently have not chosen to pursue transplant or dialysis? BC Renal is looking for patients and caregivers to provide feedback on resources for patients who have chosen conservative care. We’d love to hear from you!

Open to: Patient partners across the province

Lead Organization or Department

BC Renal


The aim of this provincial working group is to develop the skills and confidence of health care providers to use a palliative approach when caring for patients with end-stage kidney disease.  The role of the patient partner will be to provide feedback, guidance, and suggestions about what matters most to patients and their families.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.


  • Patients or family members with lived experience of chronic kidney disease
  • Experience working and sharing perspectives with diverse groups of people
  • A strong interest in partnering and working together with health care professionals to advance patient involvement and quality improvement in kidney care
  • Some familiarity with the BC health care system
  • Some engagement experience in the BC health care system is an asset
  • Selecting for diversity (e.g. age, gender, lived experience of kidney disease, geographical, ethnicity) among candidates
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.


  • Vacancies: 2
  • Commitment: Meetings will be once a month (fourth Thursday of the month) via teleconference, from 3 p.m. to 4 p.m.
  • Term membership for group members will be one year


No expenses anticipated.


This opportunity came about by identifying the need to overcome barriers to the successful implementation of a palliative approach to care for patients with kidney disease. We are looking for patients or families living with kidney disease, particularly anyone who has experience related to in-centre or home dialysis. Their perspectives will help us understand what matters and develop relevant provincial strategy and tools to enable kidney care professionals to better quality of life of patients and families by embracing a palliative approach to kidney care. Committee members include kidney care professionals, palliative care specialists, First Nations Health Authority representative, patients and families.

Health Care Partner Contact Information

Kathryn Proudfoot
Engagement Leader, Patient & Public Engagement | Provincial

From Our Community

Layton Engwer

Patient Partner, Sooke

Layton Engwer

PVN helped empower me to make meaningful contributions to Primary Care (PC) locally and provincially.  It also facilitated creation of PC Patient Voices which is focused on PC and provides education support and building on shared experiences.