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Member, Palliative Care for Patients With Kidney Disease Working Group

Posted • Last updated

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Open to Provincial Region, Patient partners across the province

Last updated

Would you be interested in reviewing materials for patients who currently have not chosen to pursue transplant or dialysis? BC Renal is looking for patients and caregivers to provide feedback on resources for patients who have chosen conservative care. We’d love to hear from you!

Open to: Patient partners across the province

Lead Organization or Department

BC Renal

Aim

The aim of this provincial working group is to develop the skills and confidence of health care providers to use a palliative approach when caring for patients with end-stage kidney disease.  The role of the patient partner will be to provide feedback, guidance, and suggestions about what matters most to patients and their families.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

  • Patients or family members with lived experience of chronic kidney disease
  • Experience working and sharing perspectives with diverse groups of people
  • A strong interest in partnering and working together with health care professionals to advance patient involvement and quality improvement in kidney care
  • Some familiarity with the BC health care system
  • Some engagement experience in the BC health care system is an asset
  • Selecting for diversity (e.g. age, gender, lived experience of kidney disease, geographical, ethnicity) among candidates
If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

  • Vacancies: 2
  • Commitment: Meetings will be once a month (fourth Thursday of the month) via teleconference, from 3 p.m. to 4 p.m.
  • Term membership for group members will be one year

Reimbursement

No expenses anticipated.

Background

This opportunity came about by identifying the need to overcome barriers to the successful implementation of a palliative approach to care for patients with kidney disease. We are looking for patients or families living with kidney disease, particularly anyone who has experience related to in-centre or home dialysis. Their perspectives will help us understand what matters and develop relevant provincial strategy and tools to enable kidney care professionals to better quality of life of patients and families by embracing a palliative approach to kidney care. Committee members include kidney care professionals, palliative care specialists, First Nations Health Authority representative, patients and families.

Engagement Leader Contact Information

Kathryn Proudfoot
Engagement Leader, Patient & Public Engagement | Provincial
604.668.8246
kproudfoot@bcpsqc.ca

From Our Community

Agnes Black

Director, Health Services & Clinical Research and Knowledge Translation – Providence Health Care

Agnes Black

It’s really hard to make changes in health care. When a PVN patient partner says, ‘This is important to us’ it keeps us grounded on why a change is needed and keeps us motivated to keep going on projects.