Skip to main content

Because your voice matters.

Member, Glomerulonephritis Materials for Patients & Clinicians Working Group

Posted

Closed

Commitment: Long-term

Connection method: Virtual

Open to Provincial Region

Posted

Role description
BC Renal Glomerulonephritis (GN) Committee is looking for patients and family members who are living with GN to participate in a working group. This working group will develop GN education materials for staff providing kidney care and patients receiving care at Kidney Care Clinics in BC. People with the lived experience will work together with health professionals in this group to create these education materials,
ensuring that all of them are helpful to those living with GN in BC and the patient resources are easy to understand.

Level of engagement
Collaborate: BC Renal will work together with all members in decision making, developing alternatives and solutions, and include your recommendations in each decision as much as possible.

Requirements
• Patients or family members with lived experience of Glomerulonephritis (GN) (e.g. IgA nephropathy, FSGS, ANCA vasculitis, membranous nephropathy, lupus nephritis) and not on dialysis.
• Experience of care at a multi-disciplinary non-dialysis care at a Kidney Care Clinic is an asset.
• Comfortable in working and sharing perspectives with a diverse group of people.

We are hoping to recruit diverse voices and welcome patients and family members of various ages, genders, cultural backgrounds, geographical regions and lived experience of GN from across the province.

Number of positions available
3

Commitment
• 1-hour meeting every one or two months via web-conference during typical workday hours (9 a.m. to 5 p.m.).
• Up to 2 hours per month in reviewing related materials between meetings.
• Term membership will be for one year.

To read more and RSVP, please click here.

From Our Community

Shana Ooms

Executive Director of Primary Care Strategy, Policy and Quality — BC Ministry of Health

Shana Ooms

Where those of us in the room may have debated policy or wording, patient voices made sure patients were top of mind. And as a result, significant improvements were made to simplify something that was otherwise complex. Patient voices at the table bring us back to reality in terms of what we are trying to achieve.