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Because your voice matters.

Member, BC Renal Palliative Care Committee

Posted

Deadline: Apply by

Commitment: Long-term

Connection method: Hybrid

Open to Provincial Region

Posted

Role description
The BC Renal Palliative Care Committee works to ensure that patients living with chronic kidney disease have access to high quality comprehensive and well integrated kidney palliative care. The committee oversees and coordinates efforts that will advance a palliative approach to kidney care that includes patient identification, advance care planning, symptom assessment and management and care of the dying patient and bereavement in all types of kidney care (i.e. non-dialysis and dialysis care).

Committee membership includes patient partners, clinical and administrative leaders from provincial and regional health authorities and BC Renal. Members will work together by sharing their perspectives to enhance strategic planning and implementation of integrated kidney palliative care. Patient partners are instrumental in guiding future work as we strive to optimize quality of life for patients living with chronic kidney disease.

Level of engagement
Collaborate: BC Renal will work together with all members in decision making, developing alternatives and solutions and include your recommendations into each decision as much as possible.

Requirements
• Person (patients or family caregivers) with lived experience of chronic kidney disease in BC; past or current lived experience of dialysis as a patient or caregiver is preferred
• Experience working and sharing perspectives with diverse groups of people
• A strong interest in partnering and working together with health professionals to improve the quality of life of people living with chronic kidney disease

We are hoping to recruit diverse voices and welcome patient partners of various ages, genders, kidney disease experiences and cultural backgrounds from across the province.

Number of positions available
1

Open to
Patients and their family caregivers with lived experience of chronic kidney disease in BC; past or current lived experience of dialysis as a patient or caregiver is preferred.

Commitment
• Quarterly meetings; 1.5 hours each via tele- or web-conference or in-person (half day) during typical work day hours (9 a.m. to 5 p.m.)
• Term membership will be for two years with possibility of extension.

Compensation
Expenses for travel and accommodation, if needed, will be reimbursed.

RSVP questions
Please respond to the following questions by email (patientengagement@bcrenal.ca) or phone (604-875-7340):
1. Why are you interested in being on this committee?
2. What skills and expertise would you bring to this committee?
3. Which renal program are/ were you or your family member in (i.e., Fraser Health, Interior Health, Island Health, Northern Health, Providence Health Care, or Vancouver Coastal Health)?

From Our Community

Shannon Griffin

Leader, Patient and Family Centred Care in Fraser Health

Shannon Griffin

Recently, a PVN Patient Advisor asked healthcare partners, “What are we learning from patients, families, and others thus far during this pandemic?”. This is an excellent question and one to ask ourselves daily.