Healthy Data Journey Mapping: Generating Evidence to Support Interoperability and Reduce Harm in Canadian Health Systems

Networked Health BC is looking for people living in BC who have received healthcare in BC in a variety of settings/places, who could share their experience in a one-hour interview.

We want to hear how your health information was shared or not shared with you, and how it flowed or didn’t flow to your healthcare providers.

Engagement aims
– Learn how patient’s health information is being shared with them – where this works well and where there are gaps.
– Understand gaps, inconsistencies and consequences to patients and providers.
– Identify successes, highlighting what works well.
– Discover what patient’s preferences, dislikes and unmet needs are
– Hear from diverse perspectives.
– Learn how patient’s health information flows or fails to flow within the healthcare system.

Background Information
Networked Health BC- formerly Healthy Data for Healthy People – is an interdisciplinary group created by its members to promote a principle-based cooperative approach to the design and use of health data in British Columbia that will optimize the delivery of quality health programs and services.

Health Data (Information) Journey Mapping is an approach to understand and then address systemic issues in healthcare information handling, including gaps, inconsistencies and the consequences to patients and healthcare providers. It also provides an opportunity to identify successes, highlighting what works well for patients and providers as well as understanding their preferences, dislikes and unmet needs.

Method and Role
– Interviews will be held from Sept – December 2025.
– A one hour Interview will be carried out virtually via Zoom or Teams to hear of your experiences receiving health care. We would like to know where you found gaps in the flow of your health information, and where there was successful health information sharing in a variety of settings. Settings such as – doctors’ appointments, tests, labs, acute care, community care, pharmacist, optometry, dentist, physiotherapy, massage, footcare, vaccination, ambulance, 811, etc.
– An email will be sent to you after the interview containing a transcript of what you shared for your review to ensure your experience is captured correctly.
– All information collected will be de-identified and key points aggregated (all interview information put together) for your privacy.
– A report will be created to share the results from all the interviews. This report will be shared provincially, nationally and perhaps internationally to help guide improvements in health information sharing.
– You may have a copy of the completed report if you wish.

Compensation:
– Currently no compensation is available.

Level of Engagement

This opportunity is at the level of Consult on the IAP2 Spectrum of Public Participation.

Eligibility

• Specific health care experiences [details below]
• Have access to technology and the internet to participate in the engagement opportunity
• Comfortable using technology to attend online/virtual meetings
• An interest in improving health care services
• The time to participate in the engagement opportunity
• Open To - Participants across the province who have received health care in BC. - Not required to be a PVN member. - Rural, remote, urban and diverse voices.

Patient Partners ARE NOT required to be PVN members to participate in this engagement opportunity.

Health Care Partner Contact Information

Sandy Ketler
Co-Chair, Healthy Data Mapping Working Group | Networked Health BC
(250) 870-8258
ketlers@shaw.ca