Posted • Last updated
Deadline: Apply by
Commitment: Short-term
Connection method: Virtual
Open to Provincial Region, Patient partners across BC
Last updated
The Library of Lived Experience is a tool for advocacy, meant to elevate the voices of those with lived experiences of neurodevelopmental conditions. We use an open-source tool called Tapestry to host submissions of lived experiences, as well as different resources.
Program Goals
• Deepen understanding of issues faced by individuals with lived experience of neurodevelopmental conditions
• Understand the priorities of individuals with lived experience within health and social systems
• Develop clear objectives for the Library moving forward (ie. topics, reach, organizations)
Contributions of the Patient Partner:
Lived experience submission: patient partners can offer testimonies in the form of lived experience submissions that will be published in the Library.
Consultations: patient partners can be advisors to our efforts through consultations (on Zoom) (compensation $30/hr)
Working groups: patient partners can join working groups to discuss specific topics/problems identified by our Leadership group (2x/month on Zoom) ($30/hr)
Leadership group: patient partners can join our Leadership Group that meets once a month to discuss goals and priorities for the Library (on Zoom) ($30/hr)
The link to our website: https://libraryoflivedexperience.ca
The link to submit lived experiences: https://ubc.ca1.qualtrics.com/jfe/form/SV_6gPPC1Tfdcrovbw
Invitation to participate in consultations
Invitation to submit lived experiences
Level of Engagement
This opportunity is at the level of Collaborate on the IAP2 Spectrum of Public Participation.Eligibility
- Willing & comfortable to share health care experiences in a group setting
- Comfort with public speaking
- Specific health care experiences [details below]
- Have access to technology and the internet to participate in the engagement opportunity
- An interest in improving health care services
- The time to participate in the engagement opportunity
- Ideally, we would like all participants to have experience with neurodevelopmental conditions (personal, familial, etc.).Lived experience submissions require internet access and comfortability with sharing experiences with the public (with the option of anonymity).If patient partners are participating in a group consultation, they should be comfortable speaking in a group setting. They should also have internet access for virtual meetings + scheduling.Leadership group and working group membership requires an ongoing time commitment to meeting, as well as internet access and comfortability with sharing in a group environment.
Health Care Partner Contact Information
Dr. Dan Goldowitz (778) 387-8653 dan.goldowitz@ubc.caInterested?
Apply by .
