Posted • Last updated
Open to Provincial Region, Patient partners across the province
BC Renal is looking for patients and caregivers to provide feedback on resources for patients who have chosen not to pursue a kidney transplant or dialysis. We would love to hear from you to have patients inform resources for conservative care!
Open to: Patient partners across the province
Lead Organization or DepartmentBC Renal, Palliative Care Committee
AimTo develop new resources for patients with kidney disease who might be transitioning to conservative care in BC. Patient partners will review and provide feedback to ensure language is clear and patient friendly.
Level of EngagementThis opportunity is at the level of consult on the spectrum of engagement. The promise to you is that the health care partner will listen to and acknowledge your ideas and concerns, and provide feedback on how your input affected the decision.
- Patients or family members with lived experience of chronic kidney disease
- Participant selection will take into consideration diversity (e.g. age, gender, level of education, lived experience of dialysis, geographical, ethnicity) to ensure participants reflect the population of our province
- Must have access to a computer and comfort using word processing software
- Vacancies: 10
- The project manager will communicate with patient reviewers by email or phone call. If meetings are required, scheduling will be flexible based on the reviewer's schedule.
ReimbursementNo expenses anticipated.
BackgroundSome patients with chronic kidney disease decide not to pursue either transplant surgery or dialysis. This is called conservative care. For this work, we hope to hear feedback from patients and families living with chronic kidney disease, to review the patient resources developed by the working group related to transitioning to conservative care. It is preferred that we hear from patients who are currently receiving care at a Kidney Care Clinic. This work is part of an initiative to develop and implement a provincial strategy to effectively integrate a palliative approach for all patients with chronic kidney disease. Specifically, it is important to understand and provide information on what patients need to know about transitioning to end of life, including what steps need to be involved in this process. A working group of patients, families, kidney care professionals, First Nations Health Authority representatives and palliative care specialists will develop resources for this initiative to be further reviewed. Broader input will help ensure the resources are relevant and useful for those living with kidney disease from various backgrounds.
Health Care Partner Contact Information
Engagement Leader, Patient & Public Engagement | Provincial
Engagement Leader, Patient and Public Engagement | Lower Mainland & Sunshine Coast