Brain and Heart Failure Priority Setting Partnership – Survey

You are being asked to participate because you have lived or living experience (as a patient, caregiver or health care professional) of heart failure. You do not need to have completed Survey 1 to participate in Survey 2.

Your heart and your brain are intimately connected. People with heart failure may experience changes to their brain, their thinking or their mental health. We call these the ‘brain implications’ of heart failure. What limited information we know about the connection between heart failure and its ‘brain implications’ is driven by researchers’ questions. We have not yet considered the questions of those who are directly affected.

We recently conducted a survey asking people with heart failure, caregivers and health care providers to tell us the questions they have about brain-related challenges of heart failure. We had great engagement (213 participants) with 40 questions raised.

We are now in PHASE 2 of the project.

For Phase 2, we need to narrow down the long list of questions from Survey 1. We are asking you to complete Survey 2, where you will pick up to 10 questions that you think are most important for researchers to answer.

Our goal is to produce a top 10 list of research questions that people with heart failure, their support networks (families, partners, friends), and healthcare professionals agree are the most important for research to address on the ‘brain implications’ of heart failure. We will share these research priorities to funding agencies, healthcare leaders, and partner organizations to ensure targets for future brain-heart failure research in Canada are relevant, representative, meaningful and have the potential for real impact among those who are directly affected.

Participation involves completing a 15-minute anonymous online survey to help determine which questions are most important for researchers to address.