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Open to Provincial Region, Volunteers across the province
Are you interested in health research in BC, and would you like to help improve the way patients connect to research opportunities that are meaningful to them? If so, this working group may be for you.
Open to: Volunteers across the province
Lead Organization or DepartmentThe BC SUPPORT Unit (BC Support for People and Patient-Oriented Research and Trials Unit)
AimThe BC SUPPORT Unit Permission to Contact demonstration project is a new provincial initiative to improve how BC patients and community members learn about research and provide them with more opportunities to participate in research that is meaningful to them. For this engagement opportunity, we are seeking patients and family to be members of the project’s working group/committee. The working group will be actively involved with determining requirements, designing the initiative, assisting with data collection and analysis, implementation and evaluation.
Level of EngagementThis opportunity is at the level of involve on the spectrum of engagement (www.iap2.org). The promise to you is that the health care partner will work with you to ensure that your ideas and concerns are reflected in recommendations and provide feedback on how your input affected the decision.
- Open to volunteers from across the province.
- We are hoping to recruit a diverse mix of patient partners and/or family members including those from rural and urban communities, age groups, cultural backgrounds, health care experiences, socio-economic status, etc.
- PVN members need to have previously attended a PVN orientation session. (If you have not attended an orientation but are interested please contact Karen Estrin directly to see if accommodations may be possible).
- Number of vacancies: 4-5
- Commitment: January 2017 – June 2018 (estimated end date), ~ 4 hours/month
- The working group will hold an initial face to face orientation meeting (half day) in Vancouver in January 2017, and then will connect via monthly teleconference/web conference meetings (typically 1 hour) and weekly or bi-weekly email communications
ReimbursementTravel expenses (flight, hotel, mileage, per diem) will be reimbursed for any face to face meetings.
BackgroundThe BC SUPPORT Unit (the Unit) is a multi-partner organization created to support, streamline and increase patient-oriented research throughout BC. The Permission to Contact demonstration project was selected as one of two projects to advance research in priority areas and to evaluate the operations of the SUPPORT Unit in the conduct and application of patient-oriented research. The draft objectives of the Permission to Contact initiative are to:
- Increase BC patients and residents’ research knowledge and awareness
- Provide BC patients and residents with more opportunities to participate in research meaningful to them
- Improve participant recruitment into research studies in BC
Engagement Leader Contact Information
Engagement Leader, Patient and Public Engagement | Lower Mainland & Sunshine Coast