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BC Cancer Agency Working Group: Patient Reported Information and Symptom Management Questionnaire

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Open to Provincial Region, Patient partners across the province

Last updated

Have you had experience with cancer care? Would you like to be involved in an ongoing working group to improve the patient experience with cancer care? Our working group is reviewing and improving the Patient Reported Information and Symptom Management (PRISM) questionnaire.

Open to: Patient partners across the province

Lead Organization or Department

BC Cancer Agency

Aim

The BC Cancer Agency PRISM Working Group aims to:
  • Review and evaluate the contents of the PRISM questionnaire
  • Propose and manage changes to the process for the PRISM questionnaire
  • Make recommendations to the BC Cancer Agency regarding processes that involve the PRISM for improved patient care and outcomes.
Patient advisors will provide a patient perspective to the group. Patient advisors will provide feedback on the questionnaire and the way in which the questionnaire is used in patient care.

Level of Engagement

This opportunity is at the level of involve on the spectrum of engagement (www.iap2.org). The promise to you is that the health care partner will work with you to ensure that your ideas and concerns are reflected in recommendations and provide feedback on how your input affected the decision.

Eligibility

This opportunity is open to patient partners who have:
  • Experience with cancer care more than 1 year ago and less than 5 years ago as an adult patient or family/loved one/caregiver
  • Ability to represent the patient experience broadly

Logistics

  • Vacancies: 3
  • Format: Teleconference
  • Frequency: The working group will meet every 3-4 weeks by teleconference with the first meeting date TBD. Advisors may participate in consultation phone calls separate from meetings of the working group.
  • Term: 7 months to a year
 

Reimbursement

A toll free teleconference number will be provided. No expenses are anticipated.

Background

The Patient Reported Information and Symptom Management (PRISM) questionnaire is completed by each new patient referred to BC Cancer Agency at the time of the first oncology consultation visit. It generates a preliminary health information profile of the patient. In combination with screening tools, it serves to flag patient’s issues and concerns so to guide management and generate appropriate referrals and supports. This working group aims to review and improve the questionnaire and the processes of use in the cancer care setting. Adjusting to life after cancer treatment is challenging emotionally, physically and practically. Patients within one year after active treatment often struggle as Advisors. Advisors to this working group should have completed active treatment more than one year ago. See the Terms of Reference for this working group.

Engagement Leader Contact Information

Jacquelyne Foidart
Engagement Leader, Patient and Public Engagement | Thompson Cariboo
250.879.1077
jfoidart@bcpsqc.ca

 

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