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Barriers and Facilitators to Patient Engagement in Research and Research Related Activities – Survey

Posted • Last updated

Deadline: Apply by

Commitment: Short-term

Connection method: Virtual

Open to National Region, Provincial Region

Last updated

This survey is being conducted by members of the PEPR Partnership – standing for Partnership for the Engagement of People in Pain Research. We are inviting people with lived experience of chronic pain who have been involved in research or engaged in research adjacent organizations, nationally funded research networks, national grassroots pain organizations, etc., to participate in this survey.

Our goal is to better understand how and why people living with chronic pain engage in research, also known as patient engagement in research. Briefly, patient engagement in research means meaningful participation in all aspects of research, which can range from involvement in study design, to data analysis, to knowledge mobilization.

The information collected from this survey will help us to better understand and support patient partner members in chronic pain research.

The survey should take approximately 20 minutes to complete. Please answer questions to the best of your ability. You have the option to skip questions. At the end of the survey, you will have the option to share your name and email to enter into a draw for a $50 CAD gift card of your choosing.

Eligibility
We’re looking for participants who are over the age of 18, who live with chronic pain and who have had experience working in a research setting (i.e., involved in research or engaged in research adjacent organizations) as a patient partner.

Compensation
Upon completing the survey, participants will have the choice to enter into a draw for a $50 CAD gift card of their choosing.

• Recruitment Poster – English
• Recruitment Poster – French

Before proceeding, please review the Letter of Information at the bottom of the page.

For further questions, please contact Naya Nour-Eddin, email: nnouredd@uwo.ca

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From Our Community

Terri McKinlay

Patient Partner, Penticton

Terri McKinlay

The Patient Voices Network has provided Rylee and me the ability to channel our experience into positive change for others. Our voice in decision making, planning and partnerships for mental health care is having a profound impact on our healing process.