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Because your voice matters.

Participant, “What Matters to You” Action Planning Workshop

Posted • Last updated


Open to Patient partners across the province

Last updated

Are you or your loved one receiving kidney or dialysis care in BC? Do you want to help us improve patient experience in renal services? If yes, we would love for you to join our workshop and contribute your thoughts on mapping out a way forward for setting health-related goals with patients in kidney care.

BC Renal is  seeking patients and family members to participate in a “What Matters to You” Action Planning Workshop. The goal of the workshop is to co-develop a collective way to improve patient goal-setting.

The workshop will include patients and family members living with chronic kidney disease, health professionals from provincial and regional health authorities, as well as staff from BC Renal and The Kidney Foundation of Canada—BC & Yukon Branch. Participants will review the results of recent focus groups on the topic, share their perspectives and map out an actionable plan forward for the provincial renal network.

Level of engagement

Collaborate: We will look to you for advice in decision making, developing alternatives, and solutions and include your recommendations into each decision as much as possible.


  • Patients or family members with current (or recent past) lived experience of chronic kidney disease, including receiving non-dialysis kidney care at a Kidney Care Clinic or any type of dialysis treatment
  • Experience working and sharing perspectives with diverse groups of people
  • A strong interest in partnering and working together with health professionals to enhance patient goal-setting and patient experience
  • Prior experience with one of the regional patient goal-setting focus groups would be preferable but not required
  • We are hoping to recruit diverse voices and welcome patient partners of various ages, genders, kidney disease experiences, and cultural backgrounds from across the province


One-day in-person workshop on Monday, February 3, 2from 8 a.m. to 3 p.m. in Vancouver. Participants from outside of Metro Vancouver will likely need to travel to Vancouver by Sunday, February 2


Expenses for ground transportation and travel will be reimbursed. For any out-of-town participants, hotel accommodation for the night before the event will be arranged. An honorarium of $50 will be offered to each participant as a token of appreciation.

To participate:

Please respond to the following questions to or phone (604-875-7340) by December 27:

1. Briefly describe your experience with kidney disease.

2. Which renal program are/ were you or your family member in (i.e. Fraser Health, Interior Health, Island Health, Northern Health, Providence Health Care, or Vancouver Coastal Health)?

3. Why are you interested in participating in this workshop?

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.