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Because your voice matters.

Member, SAVE BC Patient Partner Committee

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Open to Patient Partners across BC with preference for Northern BC or Vancouver Island

Last updated

SAVE BC provides long-term care for individuals with premature atherosclerotic cardiovascular disease (ASCVD) and their first-degree relatives (FDRs), and facilitates research to find new ways to screen, diagnose and treat ASCVD in BC.

ASCVD is a type of heart disease resulting from a buildup of fatty plaque deposits in blood vessels, and is labeled as premature if a heart attack or angina (chest pain) occurs before ages 50 in men or 55 in women.

The Patient Partner Committee provides feedback on the design of our program and website, perceived benefits and obstacles to participation and engagement, which data and outcomes are most important to them, and how SAVE BC research findings are communicated. Patient partners also have the opportunity to support and contribute to our patient-oriented research projects and public outreach initiatives.

Open to patient partners across the Province with a preference for Northern BC or Vancouver Island, as these regions are currently underrepresented on our Patient Partner Committee.

If you are over the age of 19 and have been diagnosed with premature ASCVD or are a FDR (parent, sibling or child) of someone diagnosed with ASCVD, then please consider joining this committee.

Biannual meetings are held at St. Paul’s Hospital with the option to attend remotely via teleconference/webinar. Meetings are one hour in duration and the next meeting is scheduled for June 2020 – exact date/time will be determined using a Doodle poll. The commitment is for a two-year term with the possibility of renewal.

Contact

Chad Brown
Senior Research Coordinator
chad.brown@hli.ubc.ca

From Our Community

Agnes Black

Director, Health Services & Clinical Research and Knowledge Translation – Providence Health Care

Agnes Black

It’s really hard to make changes in health care. When a PVN patient partner says, ‘This is important to us’ it keeps us grounded on why a change is needed and keeps us motivated to keep going on projects.