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Because your voice matters.

Patient & Family Workshop: Improving Research Participation and Biobanking

  • This event has passed.

January 22, 2018 @ 5:00 pm - 7:30 pm

Free

Would you like to help improve health research practices at BC Children’s Hospital?

This interactive workshop is aimed at parents and youth (ages 11-18) who have been or currently are hospital patients. The BC Children’s Hospital BioBank would like to hear your opinion on how children and their families would like to participate in medical research, specifically biobanking. The BC Children’s Hospital (BCCH) BioBank is a library of biological samples and medical information for health research, to which patients can voluntarily contribute.

A short presentation will be shown about different types of research, including biobanking, followed by a group discussion on topics such as: what are the benefits, risks and barriers to biobanking? How we can we make participation in biobanks easier for you? The input from this session will be used to recommend future biobank practices that work for you and are effective, respectful and inclusive.

A $25 gift card will be provided in recognition of your time. Parking, transit, child-care costs and other out of pocket expenses will be reimbursed. Refreshments will be provided.

When: Monday, January 22, 2018 | 5:00 – 7:30 p.m.

Where: BC Children’s Hospital Research Institute | 950 West 28th Avenue, Vancouver

Click here to learn more and register!

Details

Organizer

BC Children’s Hospital BioBank
Phone:
604.875.2000 ext. 6423
Email:
biobank@cw.bc.ca
Website:
https://bcchr.ca/biobank

Venue

BC Children’s Hospital Research Institute
950 West 28th Avenue
Vancouver, BC V5Z 4H4 Canada
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From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.