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2017 Don Rix Distinguished Keynote Address: “If You Are Not at the Table, You Are On the Menu: Participatory Science in Health”

October 19, 2017 @ 4:00 pm - 7:00 pm


Genome BC is pleased to welcome Sharon Terry from Genetic Alliance as 2017 Don Rix Distinguished Keynote speaker. Please join us on Thursday, October 19 for Sharon’s compelling keynote: “If you are not at the table, you are on the menu: participatory science in health.” Come hear the fascinating story of how this citizen scientist took the medical research community by storm when she forged a path to address the rare genetic condition that affects her children. Sharon’s story will inspire you as she takes us through her lifelong quest to transform systems that would accelerate treatments for her children’s disease, as well as many others.

The goal for this event is prioritize those who are involved in the rare disease community, whether a patient or a professional, and therefore a password has been created for priority attendees to use on Eventbrite until September 8, 2017.  This event will sell out quickly, so you are encouraged to use the password and register before end of day September 8, 2017. The event will then open up to the general public.

Click here to register. The password for priority attendees is: GBCDRDK2017

Follow the Twitter conversation at #DRDK2017.


Vancouver Convention Centre
1055 Canada Place
Vancouver, BC V6C 0C3 Canada


Genome BC