Patient Partner, Decision-Making in Patient-Oriented Research: What Works Team

We all want to work together as a team to improve health care research. The question is: how? UBC Okanagan is seeking two patient partners to share their experience in creating more inclusive practices for collective decision-making in patient-oriented research.

Open to: Patient partners preferably from Abbotsford or Surrey

Lead Organization or Department

University of British Columbia, Okanagan

Aim

• To better understand how group decision-making activities (i.e., consensus methods) can be used in partnered patient-oriented research
• Patient partners will ensure that the findings are relevant, applicable and valuable to their experiences to ensure the best recommendations on how consensus methods are used in partnered research.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

If you have a strong interest in this work but have not yet completed a PVN orientation and volunteer agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact the engagement leader directly.

Logistics

• Vacancies: 2
• Date/Time: To be determined with patient partners
• Location: Via telephone, videoconference, email and in-person
• Commitment: 4 times a year, 2 hours each, with document review prior to meeting

Reimbursement

Out-of-pocket expenses (mileage, transit fares, parking) will be reimbursed. In addition, compensation will be discussed with the patient partner on an individual basis.

Background

Through a grant received by the BC SUPPORT Unit, the research hopes to address the issue of research results, aimed at helping patients, providers and the health system, often not being used in health care. Health care consensus methods can be used to set health services priorities, change policy, inform research, and improve care for patients. Therefore, this research hopes to best understand how to use consensus methods in partnership and patient-oriented research.

Health Care Partner Contact Information

Rableen Nagra, MA
Patient Engagement Specialist, Fraser Centre – BC Support Unit
778.238.6418
rableen.nagra@fraserhealth.ca