Participant, Primary Health Care Policy Development Online Dialogue Session

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Help the Primary Health Care Teams Policy Project in improving the integrated health system for patients with complex needs living in BC! This research study will conduct an online discussion session with patients with two or more chronic health conditions, their family members or caregivers to co-create actions to increase patient engagement in policy.

Open to: Patient partners across the province

Date
20201122

Volunteer Opportunity

Help Primary Health Care Teams Policy Project in improving the integrated health system for patients with complex needs living in BC! This research study will conduct an online discussion session with patients with two or more chronic health conditions, their family members or caregivers to co-create actions to increase patient engagement in policy.

Lead Organization/Department

School of Nursing, University of British Columbia, Okanagan

Aim

The goal of this phase of the project is to better understand patient, family member, and caregiver engagement in creating policy, putting policy into practice, and evaluating policy on primary healthcare teams and integration. Together we will create actions for involving patients and caregivers in these activities in the future.

Level of Engagement

This opportunity is at the level of collaborate on the spectrum of engagement. The promise to you is that the health care partner will work together with you to formulate solutions and incorporate your advice and recommendations into the decisions to the maximum extent possible.

Eligibility

• Comfortable sharing your story
• Are currently 19 years old and over, or the caregiver (significant other, family member, friend) that lives in BC and provides care for someone in BC
• Have two or more chronic health conditions and see two or more health care providers that work together in a team

Please Note:
• You must be fluent in English; that is, you must be able to understand and communicate (speak and/or write) in English and understand the consent form that we provide you. If you do not understand or speak English, you can have a caregiver translate for you at the interview.
• If you have a strong interest in this work but have not yet completed a PVN orientation and Volunteer Agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact Cathy Almost

Logistics

• Vacancies: 10-15
• Date and Time: to be determined (approximately 2-2.5 hours)
• Location: teleconference/videoconference
• Commitment: one week to 6 months

Reimbursement

If you would like to participate in this opportunity, but have concerns about your internet provider and data limit, please contact Cathy Almost (calmost@bcpsqc.ca) and we can identify solutions. Otherwise, no expenses are anticipated.

Background

The purpose of conducting the dialogue session is to develop recommendations and actions to support integration through primary healthcare teams for adults with two or more chronic health conditions in primary healthcare settings. We will conduct an online dialogue session as part of a larger study being completed in four provinces in Canada including British Columbia, Alberta, Ontario, and Quebec. We will share the results of our policy study and patient interviews in a summary before the meeting. Using different activities, we will discuss how patients and caregivers could be involved in building and applying policies for primary health care teams and integrated health services.

The purpose of conducting the discussion session is to improve health services integration for adults with two or more chronic health conditions. Some of the questions that we ask may seem sensitive. You do not have to answer any question if you do not wish to. If you have any concerns you can talk to the research assistant or contact the researcher when discussing participation in this opportunity.

You are invited to take part in a discussion session with others from your province. Given the current situation due to COVID-19, the discussion session will take place via computer or teleconference using UBC Skype or UBC licensed Zoom and that for Zoom the servers are in Canada. We will share the results of our policy study and patient and provider interviews before the meeting. Using different activities, we will discuss how patients and caregivers could be involved in building and applying policies for primary health care teams and integrated health services. Together we will create actions for involving patients and caregivers in these activities in the future. The discussion session will be 2 – 2½ hours in length. Discussions will be recorded on whiteboards, activity handouts, field notes, and will be audio-recorded. The meeting will be facilitated by Nelly Oelke and another research team member. A research assistant and/or graduate student will take notes. We will also ask you to complete a form with questions about yourself.

Interested?

Open to patient partners across the province

If you have additional questions about this volunteer opportunity, please contact:

Cathy Almost
Engagement Leader, Patient and Public Engagement | Northern Region
250.615.9932
calmost@bcpsqc.ca

Deadline
November 22, 2020