Member, Palliative Care Advisory Group

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Serious illness is a very difficult time for all involved and patient and family/caregiver experiences are sometimes not the best they could be.  Would you like to share your experience to help shape the future of palliative care in the Okanagan? As a member of the advisory group, you will have an opportunity to use your experience to make things better for others. The goal of the group is to develop a new model of palliative care and define future processes that better support patients and families in their journey.

Open to: Patient partners and families from Interior region

Date
20201115

Volunteer Opportunity

Serious illness is a very difficult time for all involved and patient and family/caregiver experiences are sometimes not the best they could be.  Would you like to share your experience to help shape the future of palliative care in the Okanagan? As a member of the advisory group, you will have an opportunity to use your experience to make things better for others. The goal of the group is to develop a new model of palliative care and define future processes that better support patients and families in their journey.

Lead Organization/Department

Shared Care in collaboration with multiple organizations.

Aim

Patient/caregiver/family partners will share their experience, ideas and suggestions for palliative care improvement through an interview and/or by completing a survey.

Level of Engagement

This opportunity is at the level of involve on the spectrum of engagement. The promise to you is that the health care partner will involve patients in planning and design phases to ensure ideas or concerns are considered and reflected in alternatives and recommendations.

Eligibility

• Interest in improving palliative care
• Experience in palliative care as a patient, caregiver or family member
• Palliative care services accessed in Interior Health
• Self-awareness to the sensitivity of the subject matter and awareness of the feelings that might emerge (support provided through regular check-ins)

If you have a strong interest in this work but have not yet completed a PVN orientation and Volunteer Agreement, are unsure if your experience is a good fit or feel another format of engagement would work better with your availability, please contact Carol Stathers

Logistics

• Vacancies: 6-8
• Date and Time: October 2020 to August 2021:

  • one initial interview late in late October or early November
  • participation can be one time before the end of November or volunteers could make themselves available to answer additional questions as the work progresses – estimated project completion August 2021.

• Commitment: seven months to a year

Reimbursement

There are no reimbursable costs associated with this opportunity.

Background

  • Why has this opportunity come about? There are several silos of care in healthcare and palliative care is no different. In an effort to improve the palliative care journey for patients and families, several people involved need to come together to understand the current state, identify opportunities for improvement, and establish an ideal future for palliative care in the Vernon area.
  • Who else will be involved? Patients and families/caregivers, Independent physicians and specialists, Interior Health palliative care nurses, doctors and administrators, BC Cancer clinicians and coordinators, North Okanagan Hospice, and 2 project consultants.

Are there any potential risks, and how might they be mitigated?

We know that palliative care evokes feelings for everyone, especially if their experience is current or recent. We want to make sure that everyone takes care of themselves during this time. It will be important for the team to be sensitive to the subject matter and therefore regular check-ins will be done with participants.

Interested?

Open to patient partners from Interior region

If you have additional questions about this volunteer opportunity, please contact:

Carol Stathers
Engagement Leader, Patient and Public Engagement | Interior Region
778.516.3308
cstathers@bcpsqc.ca

 

Deadline
November 15, 2020