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Because your voice matters.

We’re Engaging Younger Patient Partners! Here’s How

Posted • Last updated

Categories: My Experience

A key priority for PVN is to diversify our network to better reflect the population in BC. We’ve been working to recruit people with specific health experiences, youth and men, as well as populations of varying social and cultural backgrounds. In this post, our engagement leader Carol Stathers tells us more about PVN’s initiatives to engage youth:

As an engagement leader, some of my greatest challenges in building a diverse network are the areas of gender and age. As an example, our current membership across the province consists of approximately 78% women, and about 20% of our patient partners identify as being under age 50. Only 2% of them are under age 25.

My current area of interest involves improving the balance of younger patient partners within engagement opportunities, as we recently opened up our network to include patient partners under age 18. One of our youngest patient partners is Brooklyn Kostiuk, who is 17 and lives in the Interior region. She told us more about why she decided to become a patient partner:

Brooklyn Kostiuk, one of our youngest patient partners

“At first, it was a great way as a high school student to gain volunteer hours and to add to my personal profile on my university applications. But, as a daughter of someone who works in the medical field and who has past experience as a patient involved with surgery, it is now in my interest to be involved with helping the health system. Being involved with PVN as a teenager gives me the opportunity to share a youth’s opinion on how the health system can grow. I can improve the system for when I am an adult and accessing it for my family or even for my own patients after I have completed medical school. I encourage more teenagers like myself who have been involved with the health care system or would like to be a part of it more when they get older.”

How to reach out to younger patient partners

Some of our strategies to get in touch with potential younger patient partners include reaching out to universities and colleges and, in some special cases, we also send direct invitations when looking for patient partners with specific experience, such as maternity care. In the Interior region, for example, we have been very successful reaching out to health-related programs at post-secondary institutions.

To better communicate with younger patient partners, we use the same ways they use to communicate with their peers: email, Facebook, Twitter, Snapchat, LinkedIn, texting. Through our research, I was quite surprised to learn that there is not one “best” way, and that we need to consider utilizing all modes. So far, I’ve found that email, text and Facebook seem to be used the most.

Once we have younger patient partners involved in the network and know the best ways to communicate, we need to learn more about their areas of interest and how they would like to participate in our network. I did a short survey and found out that the top areas include health promotion/education, health research and mental health and substance use.

Barriers we must remove to engage youth  

Two challenges for our younger patient partners are feeling that their experience is too limited to be helpful, and a lack of availability during normal business hours. That’s why I usually encourage our patient partners to express interest even if they don’t feel they are a perfect match for an engagement opportunity. Our health care partners realize the value that younger patient partners bring and often want to ensure they are included, even if they face those barriers.

Trudy Halam and Tanveer Gill, patient partners from the Interior region who volunteered with Karla Warkotsch

“Hearing from our younger population is extremely important as they are, or will be, recipients of our changing health care system.  As a health authority, we want to ensure that we capture representation from all demographics within our population, including age.  This fall we heard from younger patient partners at a number of different occasions, which provided a valuable perspective and quite possibly brought us to different outcomes.  I would encourage younger patient partners to get involved, don’t be hesitant to speak up, we need your voice!”
Karla Warkotsch, Transformation Lead, Primary and Community Care Transformation, Interior Health

Help us reach out to young patient partners!

We want to empower our younger patient partners and encourage them to get involved, so we need to consider ways that we can be flexible in our approach so that they can be involved.  We will continue to encourage young people to get involved, as well as health care partners to open the doors to their involvement.

Do you have any suggestions to help us reach out to young patient partners and engage them? Comment on this post and let us know. We’d love to hear your ideas!

Author: Carol Stathers

Carol is an Engagement Leader from the Interior Region. She is excited to see the extensive involvement of patient partners in health care improvements across the province and always interested in learning how to get our patient partners more involved. Outside of work she enjoys hiking and family time in warm places!

From Our Community

Karla Warkotsch

Patient Experience Consultant – Interior Health

Karla Warkotsch

The question I like to ask health care employees is ‘Who is this for?’ and ‘Do we have the right people at the table?’ As a health care employee, I see how easy it is to fall into doing for, rather than doing with patients. The voices of the patient, family and caregiver are essential to ensure the patient is central to the direction and focus of the work being done.